tag:blogger.com,1999:blog-7924439865196022375.post1632099103449734138..comments2024-03-28T03:16:58.351-04:00Comments on A Matter of Life and Breath: Off the Vent!Piperhttp://www.blogger.com/profile/01992462169607238118noreply@blogger.comBlogger41125tag:blogger.com,1999:blog-7924439865196022375.post-30473893520875545842010-06-14T23:25:54.405-04:002010-06-14T23:25:54.405-04:00I'm thrilled for you Piper! I love to hear yo...I'm thrilled for you Piper! I love to hear your diligence about the iPad. You rock! I'm glad you have so much support.<br /><br /> You have been an encouragement on this journey so far. While I hope to have new lungs soon too, I look forward to hearing about all of your milestones while I continue to wait.<br /><br />Hugs,<br />KerryKerryhttps://www.blogger.com/profile/08812732935541718879noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-17531622218010842082010-06-13T22:53:41.446-04:002010-06-13T22:53:41.446-04:00Purely Positively Progressing Precious Precocious ...Purely Positively Progressing Precious Precocious Phenomenal (starts with the right letter but not the right sound! oops) Persevering Powerful Piper,<br /><br />Remember the time we went to Europe and you were the self-proclaimed master of beating jetlag? With midnight cold showers and random chess games? Well I do, and it is that "get 'er done!" attitude that I know is getting you through these first few days with new lungs! Keep being a rockstar (and a total inspiration) and show this whole transplant business who is boss--just like you showed jetlag who was boss so many years ago! :) You are amazing--purely positively preciously amazing!Unknownhttps://www.blogger.com/profile/13066938678154844905noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-79372335288711904912010-06-13T22:11:35.563-04:002010-06-13T22:11:35.563-04:00Gigantic lungs for a gigantic cfer :-) How appropr...Gigantic lungs for a gigantic cfer :-) How appropriate! So I guess that means your new lungs are beautiful too because you are dear.<br /> <br />This was suppposed to be funny. Of course, I don't think you are gigantic...just very tall.Laurenhttps://www.blogger.com/profile/13276138327951561009noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-85873200760553648072010-06-13T21:28:15.789-04:002010-06-13T21:28:15.789-04:00Piper - I have been following your story for a lit...Piper - I have been following your story for a little less than a year and I was jumping for joy when I read what happened over the weekend. You are truly an inspiration. Thank you..and I am so happy for you and your entire family. My son is 15 months and has CF...you are our hero!! Keep up your positive attitude.Kellenehttp://www.bradyoc.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-82595215037196859802010-06-13T21:17:59.550-04:002010-06-13T21:17:59.550-04:00I think that it is a riot that you have a death gr...I think that it is a riot that you have a death grip on that i-pad LOL! You are amazing..trying to text while on a vent, you are something else! But then again, should we expect any different from you? I suspect that you will be roaming the halls in no time, totally surpassing any expectations that doctors give. They will say x, you will do that and y as well while you are at it hehe. You keep up the good work, great spirits and that tenacity that is so you Piper and you will be out of there in record time. Enjoy those new breathers! Gentle hugs,<br />Jenn (JustDucky)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-78668222001672108772010-06-13T20:38:14.481-04:002010-06-13T20:38:14.481-04:00Hi there - I am Stephanie Watson and I am the one ...Hi there - I am Stephanie Watson and I am the one who put together Bernie Willett's book for the 25th Anniv of Celebrity Ski! I feel like I know you already, oddly. I met with Mike Campbell on Saturday to talk about the 2nd book.... and God has a way of wiggling his way into things! In between our conversations about the book, the event, etc, I asked about you and how things were going. Little did we know that that very day was THE day for you. It kinda makes my heart skip a beat! Wow and congratulations! Very powerful for me and a reminder that God does indeed work in mysterious ways. I am not sure exactly "what" brought Mike and I together for this project, all I know is that my life is richer because of it. You are an inspiration and are in my prayers!<br /><br />I am now following your blog, by the way! And thanks for your strength and insight.<br /><br />Sincerely - StephanieStephanie at Keeping Connectionshttps://www.blogger.com/profile/08322479909284562166noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-59941625359865551372010-06-13T20:29:11.761-04:002010-06-13T20:29:11.761-04:00Of course you're insisting on your iPad...that...Of course you're insisting on your iPad...that's just YOU! :) I am so excited and thrilled and happy beyond belief. Remember my aunt Val? She sends her love and my horse trainer, Cathy, said she had tears of joy and also sends her love. And my parents are thrilled and want me to send their love, too. See how much LOVE you have? It's amazing 'cuz you're amazing. Keep on keepin' on, my fellow Horsie Girl. Love you a million times over...LOVE should be the word of the day. And a shout out to Erin, Kathleen, Mike, and Joan. The Colorado crew are with you all in your celebration! Many hugs...and love, of course. :)Meegan McCauleynoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-59066793380210231652010-06-13T20:20:54.603-04:002010-06-13T20:20:54.603-04:00Matt says you can thank him later for calling it t...Matt says you can thank him later for calling it that this was the real deal. :)<br /><br />Much love to you cyster!Princess Talanahttps://www.blogger.com/profile/06082094751775447984noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-28501485309064718172010-06-13T20:20:46.707-04:002010-06-13T20:20:46.707-04:00Hey Piper, just think; soon you'll be able to ...Hey Piper, just think; soon you'll be able to laugh without coughing. I'm SO jealous!!! :-) I'm so very happy for you. :-)Darby Rallsnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-507016518758079022010-06-13T20:16:40.128-04:002010-06-13T20:16:40.128-04:00This is awesome news!! I knew you'd do well Pi...This is awesome news!! I knew you'd do well Piper. Whenever I get to thinking about you I tear up a little because I'm so freakin' happy for you! <br /><br />Love and stuff!!!Princess Jesshttps://www.blogger.com/profile/10016554702549722778noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-28104769113664599822010-06-13T20:14:38.998-04:002010-06-13T20:14:38.998-04:00Hi Piper. I am so glad to hear you are off the ve...Hi Piper. I am so glad to hear you are off the vent. You are in the thoughts of me and all my friend and family. The road ahead is long and can be frustrating but so worth it. Sending lots of love your way.CFstephhttps://www.blogger.com/profile/12808675789017622773noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-9302500006676418882010-06-13T20:07:04.332-04:002010-06-13T20:07:04.332-04:00Atta boy, girl! Sounds like things are coming alo...Atta boy, girl! Sounds like things are coming along just fine. All the best. See you in Vail in March. <br />Carl in NHAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-29575848998779721322010-06-13T19:53:00.793-04:002010-06-13T19:53:00.793-04:00Hello Piper,
I'm so excited to hear that your...Hello Piper,<br /><br />I'm so excited to hear that your time of waiting has come to an end. May this next stage of your journey be filled with healing and the sound of all of us lurkers cheering you on. <br /><br />Prayers of health, strength and thankgiving being sent your way.<br /><br />Jane, in CanadaJanenoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-42857236005165585602010-06-13T19:51:15.568-04:002010-06-13T19:51:15.568-04:00No more blue fingernails!!!!!!
No painting them...No more blue fingernails!!!!!! <br /><br />No painting them, must show them off. Proceed to boast about pulse ox.Garfield Roscoehttps://www.blogger.com/profile/18181586458941480842noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-77081087238666007552010-06-13T19:47:46.892-04:002010-06-13T19:47:46.892-04:00You go girl! SO excited for you and those new lung...You go girl! SO excited for you and those new lungs! I was wheeling my IV pole through the hospital when I got a text from a friend who also reads your blog, telling me the good news. The nurses were wondering why I was so excited! Sending lots of love your way. :)Gilliannoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-21041448697379909542010-06-13T19:43:01.962-04:002010-06-13T19:43:01.962-04:00Keep the good reports coming!!! Praying for your ...Keep the good reports coming!!! Praying for your continued positive progress.<br /><br />Linda in Louisiana<br />Mother of Mandy (with the angels) Kyle, Hunter and Brady wo/cf and Jamie 24 yom w/cf 2X Delta F 508Linda Cranehttps://www.blogger.com/profile/13564330953448327937noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-52815844574333061352010-06-13T19:32:49.171-04:002010-06-13T19:32:49.171-04:00From one Cyster on the west coast with her appendi...From one Cyster on the west coast with her appendix just removed, to another Cyster on the east coast with her brand new lungs just received, congratulations! <br /><br />These organs are like Lego parts to us CFers, right? Put in the good organ, take out the bad one.... <br /><br />I'm just being silly. I so very happy and excites that you are progressing so well! I can't wait to hear you describe how amazing these new lungs feel.... <br /><br />FIGHT ON PIPER!!!!!NoExcuseshttps://www.blogger.com/profile/01015122167362668804noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-19556906037660587452010-06-13T19:19:51.343-04:002010-06-13T19:19:51.343-04:00((((((((((((HUGS)))))))))))!((((((((((((HUGS)))))))))))!Denise Fahrhttps://www.blogger.com/profile/14628704302255060878noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-46924500197810755512010-06-13T19:12:37.362-04:002010-06-13T19:12:37.362-04:00girl all I can think of is you in the ROC arguing ...girl all I can think of is you in the ROC arguing with the people in the restaurant to let us sit down and talk. So that is what I am imagining you are like right now, only not talking and just using your hands haha!!!!<br /><br />I'm also waiting for the blog about you up and walking the halls. I can't imagine what kind of havoc you are going to wreck on those halls there! You are an exercise machine and look what that did for you! Off the vent in 24 hours :)Amyhttps://www.blogger.com/profile/12354849302798817593noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-47056284292829083092010-06-13T19:12:15.553-04:002010-06-13T19:12:15.553-04:00Piper,
I've been following your blog for a cou...Piper,<br />I've been following your blog for a couple of months now, but this is my first time commenting. I'm so, so very happy for this wonderful gift you have received. You have inspired so many by honestly and generously sharing your journey. You have a legion of cheerleaders all around not only the country but the world, rooting you on as you begin this next chapter. Love and light to you, Piper.Autumhttps://www.blogger.com/profile/09099205411177928083noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-14653454557670804292010-06-13T18:58:27.703-04:002010-06-13T18:58:27.703-04:00Hey Piper so so happy for you :)Best news to wake ...Hey Piper so so happy for you :)Best news to wake up to over here in Australia. Joanna (dasjsmum)xxxxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-77954492130858220842010-06-13T18:51:09.130-04:002010-06-13T18:51:09.130-04:00Piper, I've been one of those silent blog read...Piper, I've been one of those silent blog readers, keeping tabs on your transplant journey. When I got home last night and saw that you had gotten your lungs, I couldn't wipe the silly grin off my face the rest of the night. You've been in my prayers and I will continue to lift you up and into His hands. May you feel His peace and grace as you start this new journey with your new lungs!!! (so excited for you)Anonymoushttps://www.blogger.com/profile/09143900338368274777noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-79399705754643328282010-06-13T18:49:17.257-04:002010-06-13T18:49:17.257-04:00I am so glad to hear that you got new lungs! Praye...I am so glad to hear that you got new lungs! Prayers to you and the donor family. Get Well Soon!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-26456368546170939482010-06-13T18:48:51.797-04:002010-06-13T18:48:51.797-04:00Oh Piper! You are so incredibly amazing. :) And...Oh Piper! You are so incredibly amazing. :) And Apple really should get wind of your blog and demands to have your iPad... just a few hours out of lung transplant surgery! They should be sending you a new one free every year for life! LOL.<br /><br />Rest up, breathe deeply and recover well. We want to hear all the itty bitty details about everything once you're up to it. :)<br /><br />Many {{{hugs}}} ~JulietJuliet Pagenoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-26797345066736142992010-06-13T18:42:50.274-04:002010-06-13T18:42:50.274-04:00I'm literally doing a happy dance right now - ...I'm literally doing a happy dance right now - you are a rock star cyster!! <br /><br />As for the breathing, I didn't notice how awesome my new set was until I went for my first walk and watched my sats stay 98-100. It was amazing and made me cry. Speaking of which, don't be surprised if your emotions are all over the place. The drugs will do that to you until you get use to them. Besides, you kind of went through a life changing event, expect laughter, giddyness and tears :). Much love and light your way - still have my whole family praying for your AWESOME recovery <3Jen Girlhttps://www.blogger.com/profile/09422438977113019712noreply@blogger.com