tag:blogger.com,1999:blog-7924439865196022375.post494921174022052452..comments2024-03-28T03:16:58.351-04:00Comments on A Matter of Life and Breath: Pip's Tips: Lessons on How to Survive the HospitalPiperhttp://www.blogger.com/profile/01992462169607238118noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-7924439865196022375.post-89538729999042556922009-11-22T16:59:10.348-05:002009-11-22T16:59:10.348-05:00Piper, my hubby (CFer) fills a squirt bottle with ...Piper, my hubby (CFer) fills a squirt bottle with alcohol and sprays down his nebs (esp while in the hospital) It works great!jcm6808https://www.blogger.com/profile/15370520955525325210noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-50797549053685021932009-07-31T12:32:00.029-04:002009-07-31T12:32:00.029-04:00Great tips! I always bring back up meds too! But m...Great tips! I always bring back up meds too! But my nurses are pretty good about the enzymes. They give me an entire bottle, and I keep it at bedside! They trust me to take them when needed. <br /><br />I do the whole discharge thing too! Because before, I'll tell my nurse i'm leaving "today" and she is clueless. Most of the time, our doctors don't round until after lunch...so I make sure the orders are in place the day before!<br /><br />And I've had the wrong size iv placed for a ct scan too! And after 5 unsuccesful attempts to put one in, well, they decided to let me use my port. And when I got down to CT, the doctor said that using my port was fine. So now i try to do all i can to use my port!<br /><br />Praying you get out of there soon!Kateyhttps://www.blogger.com/profile/11628086713110351792noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-4902651847060003862009-07-31T01:03:44.448-04:002009-07-31T01:03:44.448-04:00So true!!! I just got my enzymes this morning and ...So true!!! I just got my enzymes this morning and thankfully I had them with me :) I also bring alcohol pads. Wow you guys get to switch your neb cups? Ours don't get switched :( they are stored in a bag after each treatment and that is it. <br /><br />Hope you got sprung today!!!!! Love ya!Amyhttps://www.blogger.com/profile/12354849302798817593noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-78646150672618190752009-07-30T17:40:01.668-04:002009-07-30T17:40:01.668-04:00Hi Piper,
Great post. I just got out of the clink ...Hi Piper,<br />Great post. I just got out of the clink so I know what you mean.<br /><br />I jsut read some of you past post and saw you quit your job. Good for you! I hope you don't mind me asking but what do you do for insurance?<br /><br />I went active while you were in Turkey. I figured it was time. So maybe we will both have new lungs before 2010!<br /><br />I hope you get out of the hospital soon.<br /><br />StephanieCFstephhttps://www.blogger.com/profile/12808675789017622773noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-46644416376526241742009-07-30T13:54:34.406-04:002009-07-30T13:54:34.406-04:00Couldn't resist commenting on this one...had n...Couldn't resist commenting on this one...had nearly the same experience with the CT scan IV only no way in hell did I let them try 5 times before putting my foot down, LOL. After getting the smaller IV in on the first try (which as we know, won't work for CT contrast), I let one other nurse on the floor try with the bigger needle, then said I wanted the crisis nurse - in my center, this is the person that can start an IV in ANYone. So it was only 3 pokes for me. <br /><br />But let me just tell you, they used my port for CT contrast once before - the CT techs bitched and moaned and whined because they had to do *gasp!* extra work, but it CAN be done. I swear, the medical model is so far removed from patient comfort it's ridiculous. <br /><br />Same experience with enzymes, too. And oddly, HTS seems to really throw the inpatient pharmacists for a loop. What? they have to do MATH?! <br /><br />Glad you're gettin' sprung soon!whatsherfacehttps://www.blogger.com/profile/02767972427264230975noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-33293680408412130482009-07-30T10:57:23.646-04:002009-07-30T10:57:23.646-04:00Piper you rock. You crack me up...and most of all,...Piper you rock. You crack me up...and most of all, you are SOOOO RIGHT! The enzyme thing REALLY drives me nuts. I also love when they give you the wrong enzymes. Lame. <br /><br />Hoping you get outta there soon!Heidihttps://www.blogger.com/profile/07791278701579085418noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-52763397919928541452009-07-30T06:07:10.922-04:002009-07-30T06:07:10.922-04:00loved it, all so true! I've also gotten to whe...loved it, all so true! I've also gotten to where I make a run to costco/supertarget while I'm waiting for a bed to get some basic munchies AND a flat of gatorade/water/etc;.<br /><br />That way, I can munch and hydrate to my heart's content without wasting "nurse buzzes" simply to ask for something to drink...and then having to wait for it since waitstaff duties are appropriately pretty low on their priority lists. Just a thought for next time (and others who may read this!) Glad you're getting to go home to your furchild!Jessicahttps://www.blogger.com/profile/13257021143930525182noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-48987804880281656152009-07-30T02:24:26.936-04:002009-07-30T02:24:26.936-04:00It's amazing how things so far away can be so ...It's amazing how things so far away can be so much the same! I've had the same exact experiences. I warn people of my discharge DAYS ahead of time :)<br /><br />They just went to a new policy at my Hole in that they only switch out the mouth pieces every day and the actual neb cup about every third day! Crazy!<br /><br />RonnieAnonymoushttps://www.blogger.com/profile/06849674714471543078noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-40584119810531251992009-07-30T00:19:30.454-04:002009-07-30T00:19:30.454-04:00Thanks for that, I am in desperate need of some to...Thanks for that, I am in desperate need of some to do while its 11:15pm...in the lock up. I too always bring my own enzymes b/c they are either great about getting them to me or they really suck. Here they also have a 24 hour rule with neb cups -however they give us little white lunch sacks to store our cups in...Ill admit right now my pulmozyme cup is still plugged in sitting next to my machine...Anonymousnoreply@blogger.com