tag:blogger.com,1999:blog-7924439865196022375.post6268456966317493225..comments2024-03-28T03:16:58.351-04:00Comments on A Matter of Life and Breath: Oh-bla-di, Oh-bla-daPiperhttp://www.blogger.com/profile/01992462169607238118noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7924439865196022375.post-51246188387855404042010-07-25T21:31:44.302-04:002010-07-25T21:31:44.302-04:00I couldn't have summed it up better myself, ev...I couldn't have summed it up better myself, everything is new and yet, not, at the same time!Jesshttps://www.blogger.com/profile/08191778309873176164noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-53788893958275296072010-07-25T11:35:16.001-04:002010-07-25T11:35:16.001-04:00Piper, You are making an amazing journey and I rea...Piper, You are making an amazing journey and I really appreciate you sharing it with me. You provide some amazing insights to the physical / emotional / mental transition process that you've undergone. Thank you.<br /><br />Wow, I have to compliment Emily on her comments. Very well said and far more eloquent that I could have ever written. And I completely agree with her.<br /><br />I'm confident that you'll adapt and begin to define a "new normal"... just give it time. :) And enjoy the learning curve! There's nothing quite like having that intense drive to get your hands on every piece of information you possibly can to try to understand.<br /><br />{{{hugs}}} ~JulietJuliet Pagenoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-37334055331634779212010-07-25T09:40:03.594-04:002010-07-25T09:40:03.594-04:00Piper, you are amazing! Having a transplant is no...Piper, you are amazing! Having a transplant is no picnic and recovery and adjusting is no picnic either! You are doing great and deserve to have all those feelings. Our thoughts and prayers are with you. The Greenberg FamilyGaylehttps://www.blogger.com/profile/11200139135230103751noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-29772469687071214882010-07-24T20:11:51.113-04:002010-07-24T20:11:51.113-04:00Piper,
I don't think that taking things in st...Piper,<br /><br />I don't think that taking things in stride can be the gold standard when you're going through something of such unimaginable proportions physically and emotionally. It isn't dramatic to feel scared about your new body, mourn your CF lungs or confused and uneasy about your new characterization as a transplant not just CF patient. Those emotions are raw, real and probably a whole lot more common than you even realize. To acknowledge them and feel their weight is to be fair and honest with yourself. <br /><br />Few people (in the world at large) will ever experience what you've gone through - end-stage lung disease and a double lung transplant all before 30. It is blatantly unfair and reductionistic to blame yourself for struggling with this transition. You haven't just added pills, appointments, IVs and steroids to the mix. You've witnessed the deterioration of your CF lungs, received a new pair and in the process, acquired a new chronic illness. That. is. HARD. Incomparably hard. To admit that is anything but whiny or ungrateful. <br /><br />I don't know about anyone else, but i wouldn't want my transplant poster child smiling and making the process seem easy. That would be deceptive and dishonest. I'd want my poster child to be honest, raw and have perspective as well as a healthy dose of realistic optimism... and with those as the gold standard, i think you are a pretty damn good fit. <br /><br />Love,<br />Emilyemily.https://www.blogger.com/profile/11377071485081413568noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-74077603047743778182010-07-24T17:31:20.243-04:002010-07-24T17:31:20.243-04:00I think you are in fact a transplant poster child....I think you are in fact a transplant poster child. Not because you have it all figured out and all is perfect in your post-transplant world, but because you honestly and humbly admit that all is not perfect. Even in sharing your frustrations your hopeful and grateful voice comes through and provides encouragement and inspiration to those of us who are at a different place in our journey.Autumhttps://www.blogger.com/profile/09099205411177928083noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-71687022265622187692010-07-24T17:12:15.421-04:002010-07-24T17:12:15.421-04:00<3 you're worth it.<3 you're worth it.Amyhttps://www.blogger.com/profile/10628768674387293285noreply@blogger.com