tag:blogger.com,1999:blog-7924439865196022375.post6456836214035448456..comments2024-03-28T03:16:58.351-04:00Comments on A Matter of Life and Breath: (Re)Discovering MyselfPiperhttp://www.blogger.com/profile/01992462169607238118noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-7924439865196022375.post-21212559513714910162010-01-06T03:31:02.327-05:002010-01-06T03:31:02.327-05:00You are truely an inspiration Piper. Your blogs ha...You are truely an inspiration Piper. Your blogs have helped me a lot and l am going through alot of the same feelings as you are during this uncertain time.Weybshttps://www.blogger.com/profile/02326981096372507298noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-28517633516919225142010-01-05T20:33:24.583-05:002010-01-05T20:33:24.583-05:00I don't even know what to say except; AMEN! I&...I don't even know what to say except; AMEN! I'm excited to see what transplant brings for all of us!Jesshttps://www.blogger.com/profile/08191778309873176164noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-46546711013564750342010-01-05T14:35:07.553-05:002010-01-05T14:35:07.553-05:00Piper - I am totally honoured that you would want...Piper - I am totally honoured that you would want to link to my blog! You totally have our permission!<br /><br />I am truly blessed with a wonderful husband, aren't I? He is so sweet. And yes, right before transplant parts of my personality were on the "backburner" <br /><br />I was me, but just a little bit suppressed version of me... not as energetic. Now I can laugh harder, go out more, stoop down just to pick a flower... without worry of wasting energy!<br /><br />I am so looking forward to when you get the call. I hope someone (or you) are able to update on your progress. I know you'll do great!<br />I would love to hear any changes you notice about who you are - it's so exciting!Leahhttps://www.blogger.com/profile/14573039464323432652noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-3400024426140023202010-01-05T12:56:18.781-05:002010-01-05T12:56:18.781-05:00I had the same reaction to Leah's blog. Maybe ...I had the same reaction to Leah's blog. Maybe you saw my comment there, because I was basically speechless. And I relate to you a lot in what you've just posted here (and I'm not even on the stinkin' list yet, grr).whatsherfacehttps://www.blogger.com/profile/02767972427264230975noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-27876288646013649042010-01-05T12:45:08.058-05:002010-01-05T12:45:08.058-05:00I often felt pre-transplant, and still do post, th...I often felt pre-transplant, and still do post, that CF is something to beat, that it isn't the real me - and of course that is brought into sharper and sharper focus the more it takes away from you and your abilities to do the things you feel define you, whether that's doing sport or walking or belly laughing... However, in a big way I feel CF has defined me in a beneficial way - it gives you a very down-to-earth attitude, a big dollop of humility, and a 'what's the worst that can happen' attitude to little problems and annoyances in life - at least it does for me. I think it's made me a nicer person and helped to cut through some of the arrogant side of ambition that, if it weren't for the limits put on me by CF, might have flourished. That said, it is a joy to breathe again and not need to do physio, and I feel more myself without those awful lungs. I wish rapid transplants for all of you out there waiting - may your new lungs be pink, healthy and brilliant.Will Cramerhttps://www.blogger.com/profile/14508088975549500412noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-70140009482673508952010-01-05T10:24:22.854-05:002010-01-05T10:24:22.854-05:00Great post, really has me thinking. My 20 year ol...Great post, really has me thinking. My 20 year old self certainly is quite different than the 40 year old self that is going through transplant eval, but how much of the difference is due to CF progression. I too miss laughing as often and hard as I like too, and having to keep myself reigned in is quite annoying. Let's hope the transplant goes through for all of us in need. <br />Jim <br /><br />http://fahrjr.blogspot.com/James Fahrhttps://www.blogger.com/profile/11454790754783331298noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-26538844714688455872010-01-05T03:02:42.140-05:002010-01-05T03:02:42.140-05:00Piper, I absolutely love your blog...specifically ...Piper, I absolutely love your blog...specifically your writing style. You are witty and honest and vulnerable and brilliant and when I only have time to check a few of my favorite blogs, yours is one of them! I am not on the tx list right now but I feel strongly that due to my lung function (low 20's), that will be an option for me relatively shortly. It is so wonderful to gain insights from you and others who are walking this journey. <br /><br />I would also LOVE to read the post on Leah's blog. I am planning a trip this year to Stanford to check out their "team." I've heard very good things about Stanford. <br /><br />Happy New Year!Sharlie Kaltenbachhttps://www.blogger.com/profile/13541946394486678970noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-90652635964423932272010-01-05T01:52:26.518-05:002010-01-05T01:52:26.518-05:00I agree Piper, that there are those untangibles th...I agree Piper, that there are those untangibles that change or haven't emerged yet in us. One thing I think of is that I used to be so much more spontaneous and silly and the thing I miss most about me is that I love to LAUGH and I really don't LAUGH hard anymore. Sometime I do, and I pay my weight in coughing for it. But I miss belly laughing so hard I pee myself. I can't wait for that. Its something I never thought I would take for granted....and I never will again. Thanks for a great post. I hope my headache cause will be found out soon...but miserable tonight, probably more IVs soon, KerryKerryhttps://www.blogger.com/profile/08812732935541718879noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-14143425403007302082010-01-05T00:31:48.153-05:002010-01-05T00:31:48.153-05:00Very insightful! When you have permission to post ...Very insightful! When you have permission to post the link to Leah's blog I would love to read that also. Thank you for being so honest with your writing Piper!!!<br /><br />RonnieAnonymoushttps://www.blogger.com/profile/06849674714471543078noreply@blogger.com