tag:blogger.com,1999:blog-7924439865196022375.post6534995965080636721..comments2024-03-08T03:28:07.779-05:00Comments on A Matter of Life and Breath: Webinar: Providing Best Care for Individuals with Cystic FibrosisPiperhttp://www.blogger.com/profile/01992462169607238118noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-7924439865196022375.post-3711467907185914382012-12-12T21:46:14.624-05:002012-12-12T21:46:14.624-05:00Piper~ I went to the link but could not find the w...Piper~ I went to the link but could not find the webinar. Is it up yet? Will you let us know if it is somewhere different?<br /><br />I like your use of Never Never Land. Being an Old Fogey cystic at 47 it is difficult for me when I feel like things are dumbed down for CF patients. I see an adult doctor but for years I had a pediatric guy. Nice man but there's something uncomfortable about having nurses wearing teddy bear scrubs. LOL! However I think it might be the medical profession in general. Even at my adult hospital I notice patients are treated like kiddos sometimes. It's not easy being a mature adult when you feel like poo and are wearing a backless hospital gown with no undies! How our docs see us and treat us is important though.<br /><br />I have always written down questions for my doc. I keep a notebook in my desk at the office and another one at home. I confess that sometimes I ask too much. My doc hates it when I come in with 2 pages in 6 weeks.Its all about being informed. At least I have no problem talking to doctors1 LOL!<br /><br />Keep writing, sister! <br /><br />Robertnoreply@blogger.com