tag:blogger.com,1999:blog-7924439865196022375.post8576269819833263713..comments2024-03-28T03:16:58.351-04:00Comments on A Matter of Life and Breath: We're Number 1!Piperhttp://www.blogger.com/profile/01992462169607238118noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7924439865196022375.post-85422058870320300362009-11-23T14:59:16.737-05:002009-11-23T14:59:16.737-05:00Piper, thanks so so much for linking us up to this...Piper, thanks so so much for linking us up to this blog. And congrats on being the #1 we've both known you are for a long time. ;) I hope that your birthday and time with your family this weekend are awesome and know that in giving thanks this year I will be saying a little extra thanks for you.Unknownhttps://www.blogger.com/profile/04972066621984000588noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-72888267683280267952009-11-20T21:27:23.924-05:002009-11-20T21:27:23.924-05:00Wow #1!!!!! I'm so happy and excited for you P...Wow #1!!!!! I'm so happy and excited for you Piper :)Jesshttps://www.blogger.com/profile/09807996961815741329noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-75569907612817834632009-11-20T20:15:51.927-05:002009-11-20T20:15:51.927-05:00WOOHOO for being #1!!!!!!!!! That is great news! D...WOOHOO for being #1!!!!!!!!! That is great news! Do ya have your bag packed my friend?! :0)Heidihttps://www.blogger.com/profile/07791278701579085418noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-30938791628951905052009-11-20T15:49:06.110-05:002009-11-20T15:49:06.110-05:00Whoa, number one? What's your blood type? Yea,...Whoa, number one? What's your blood type? Yea, take a little time to process it, cry it out. When I got the news I was in top 25% last week, my heart about stopped!Jesshttps://www.blogger.com/profile/08191778309873176164noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-1564953434564943572009-11-20T15:46:12.769-05:002009-11-20T15:46:12.769-05:00Hi -- congratulations. However morbid it sounds, ...Hi -- congratulations. However morbid it sounds, it's good to be high on the list going into the holidays. Lots of driving. . ..<br /><br />I've been thinking about posting this comment for a while. I don't want to intrude and I don't know you at all except from the cf2chat site and occasionally from here. But, there are so many people struggling post tx right now, and I've been thinking of them a lot, as I believe you have too. And I thought that might be frightening, a little, for someone who is waiting. I know you already know there can be very good outcomes too; I wanted to share another, ours. Will had his tx in 2001 and really for 3-4 years he couldn't get sick if he tried. He had a wonderful outcome, left the hospital after only about 12 days, lung function went up quickly and tended towards 110%. He rowed every day and coached rowing for years; we still have kids from that time come by the house occasionally. Here's a link to his story in his own words, from back then.<br />http://cystic-l.org/html/Hutcheson.htm<br /><br />Full disclosure -- he is sick now, 8 years post tx, and getting sicker; but that is mostly the result of a relatively uncommon complication (PTLD) and the lung function he lost during treatment for it. If I remember correctly that is not likely to be a concern of yours since your EBV positive.<br /><br />I hope this is helpful in some small way. Best,<br />ElizabethElizabethhttps://www.blogger.com/profile/13523429512301405181noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-77158309964895586092009-11-20T14:34:41.174-05:002009-11-20T14:34:41.174-05:00Number 1! Awesome! Now it's just a tiny bit mo...Number 1! Awesome! Now it's just a tiny bit more patience and then the (even better) good times will roll :) XxMeganhttps://www.blogger.com/profile/10070132392649221615noreply@blogger.com