tag:blogger.com,1999:blog-7924439865196022375.post2113711747509612836..comments2024-03-28T03:16:58.351-04:00Comments on A Matter of Life and Breath: The (Not So) Little Post that Wasn'tPiperhttp://www.blogger.com/profile/01992462169607238118noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-7924439865196022375.post-9731689348484245342009-06-19T13:13:12.758-04:002009-06-19T13:13:12.758-04:00Piper, I'm glad to read your blog, attitude an...Piper, I'm glad to read your blog, attitude and all! Life isn't all roses, 65 roses or whatever! I think that the whole range of emotions are what really make us human. Plus reading about it, I can at least being to understand your frustration a little bit. Do what you need to do for you not because of any external expectations... and don't try to be super CFer either! It's OK to just get pissed some days! We're here and we'll read it with as much rapt attention as all your other blog posts. :) {{{{Hugs}}}}Julietnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-69234785744427095992009-06-19T10:29:24.407-04:002009-06-19T10:29:24.407-04:00hugs to you! <3
i'm so glad you're wri...hugs to you! <3<br /><br />i'm so glad you're writing about this. <br /><br />it's scientifically proven that when women talk (or type), seratonin levels go up (i'm dead serious).<br /><br />take care.<br /><br />oh and why does your tx team care about tobi and steroids? i'm super confused.NoExcuseshttps://www.blogger.com/profile/01015122167362668804noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-54174922908207749132009-06-19T09:54:05.574-04:002009-06-19T09:54:05.574-04:00Well crap you not going leaves me as the ONLY CFer...Well crap you not going leaves me as the ONLY CFer with original lungs that will be there :)<br /><br />CF blows, plain and simple. I hope that the notebook is helping. You know I am here for you if you ever need to vent and I promise not to give you any stupid silly advice :D<br /><br />Love ya girl!!!!!!!!!!!!!Amyhttps://www.blogger.com/profile/12354849302798817593noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-88958501226105018832009-06-19T08:36:51.851-04:002009-06-19T08:36:51.851-04:00oh katey, no no no. i actually hadn't even rea...oh katey, no no no. i actually hadn't even read your post yet (i've been both a bad blogger and a bad blog reader!). my rant about people complaining were all pre-tx people, mostly with emphysema, and it wasn't a very nice thing of me to say anyway. i love your blog!Piperhttps://www.blogger.com/profile/01992462169607238118noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-1010709868548762582009-06-19T08:18:28.310-04:002009-06-19T08:18:28.310-04:00Piper, sorry about everything going on. I was loo...Piper, sorry about everything going on. I was looking forward to meeting you this weekend. Hopefully the next get together you can join up and be in much better health.<br /><br />KevinAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-12032285712323244232009-06-19T01:10:45.810-04:002009-06-19T01:10:45.810-04:00I'm hoping my post on my blog didn't make ...I'm hoping my post on my blog didn't make you angry....that was not my intention. Like you, it was just a ranting post of my frustration of steroids. The frustrating part is having a transplant, and not having to deal with "cf" things prior to transplant. That's not how it is supposed to work. I would never compare it or say it's worse that what you are going through right now. I've been there, done that...so I definitely am not trying to shoot other CFer's problems down. I totally agree with everything you have said on this post. And agree that CF just takes complete control and you can't do anything about it. So i'm hoping you aren't angry with me!! I don't think there are any CFers that don't get angry with the situation...it's not normal to not get angry! I admire you for all that you have been able to do and accomplish. I'm praying that the IVS will work wonders this time....and you will get a break!Kateyhttps://www.blogger.com/profile/11628086713110351792noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-27497937876278936172009-06-19T00:30:29.499-04:002009-06-19T00:30:29.499-04:00...what she said!
But seriously, glad to see you......what she said! <br /><br />But seriously, glad to see you back in the blog-o-sphere, and please don't feel like you "shouldn't subject [us] to [your] negative energy" because, quite frankly, I'd think you were a bit naive and delusional if you *weren't* a little frustrated and angry. This is CF, raw and nasty and real as it is, and of all "places" your blog shouldn't have to be one more you feel like you have to put on a happy face and make everybody feel ok about everything. You are a marvelous, beautiful person who I've never even met and still admire deeply, and simply by getting up in the morning and working your way through the day, taking each decision as it comes, you're finding balance and absolutely "doing all you can", and that, to me, indeed does make you a "perfect CFer". I won't tell you to "focus on the positive" or "focus on today", because I think that's unfair bullshit to people as type-a and perfectionistic as we already are, but I will say that IIIIIIIII for one think you're one hell of an amazing woman! Hope you catch a break soon, girl - you deserve one!Jessicahttps://www.blogger.com/profile/13257021143930525182noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-48433884769205945022009-06-19T00:29:41.701-04:002009-06-19T00:29:41.701-04:00I agree with Cystic Gal, Suck it CF!!!
Good post....I agree with Cystic Gal, Suck it CF!!!<br /><br />Good post. I'm glad I get to read you again.<br /><br />RonnieAnonymoushttps://www.blogger.com/profile/06849674714471543078noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-66385677991993666802009-06-18T23:54:07.892-04:002009-06-18T23:54:07.892-04:00Hey, Girl. I can't believe it's almost mid...Hey, Girl. I can't believe it's almost midnight and you posted this at 7ish and you don't have any comments yet. I'm just reading it now, and you know what? Get angry. There is a saying in feminist politics (not that this is a feminist blog-it, duh, has another theme), GET MAD AND STAY MAD. The idea is that a little madness is required to get the job done. You're getting the job done, staying healthy and fighting through the rough spots. And no you don't have to be in a good mood by tomorrow if you don't wake up that way. You do what you need to do and take out your anger on the treadmill while you're at it. Somedays you just have to tell CF to suck it. Good job doing so!Cystic Galhttps://www.blogger.com/profile/11917081885417514672noreply@blogger.com