tag:blogger.com,1999:blog-7924439865196022375.post2231934893897434607..comments2024-03-28T03:16:58.351-04:00Comments on A Matter of Life and Breath: Love (And Other Serious Side Effects)Piperhttp://www.blogger.com/profile/01992462169607238118noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-7924439865196022375.post-21967075379334931322022-03-02T07:00:08.872-05:002022-03-02T07:00:08.872-05:00If there is any word that defines the fast paced w...If there is any word that defines the fast paced world we live in today, its "technology". With the passage of time, technology has become an immensely powerful and rapidly growing arena. As such it is important to grow along with it, to be updated with the latest trends. <a href="https://organicranking.co.uk/" rel="nofollow">digital agency UK</a><br />DELLhttps://www.blogger.com/profile/07290741255515474385noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-29152520668764250312009-12-11T10:13:51.131-05:002009-12-11T10:13:51.131-05:00Piper, thank you so much for what you have written...Piper, thank you so much for what you have written here. This is my first time reading your site and I am glad I found it. I have two children, an 8-yr old son and a 3-yr old daughter who both have CF and sometimes it gets hard. But you have just reminded me (not that I had any doubt), they're worth it. They're worth all the worry, the late nights, the middle of the nights, the hospital stays and everything else. Thanks for your spirit.<br /><br />Mom of 2 w/CFAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-71468318418933031362009-12-10T14:45:45.154-05:002009-12-10T14:45:45.154-05:00Ha! "One prescription refill away from deserv...Ha! "One prescription refill away from deserving an honorary advanced degree in pharmacology"... I feel like I'm right there as well (this is Lauren's husband, Brad, by the way).<br /><br />Anyway, I came over after you posted on cf.com today, and this post really awesomely summed up how I've been feeling lately. I knew about Lauren's CF even before I started dating her (nearly 10 years ago!), so it was always just a given that she would go first. However, that knowledge could in no way dampen the amazing marvel of a woman that she was; neither could it prevent the love that we shared from flourishing.<br /><br />Am I disappointed, angry, sad that we only got to be married for 6 years? Of course! But the disease that took her life also afforded her a set of circumstances that drove her to make every moment count. And that's what I'll remember forever, and will continue to drive me in my (relatively) unsullied health to keep from wasting time or energy on things inconsequential.<br /><br />Given the seeming bleakness of the situation, the average onlooker might assume that the last decade of my life was for naught. But I am a better man for having loved Lauren through the challenges and the threat of imminent (though unpredictable) separation. I'm glad to have shared in her life, and to continue sharing with those who knew her as we try to figure out what our lives will be like without the tremendous woman we called friend, sister, and wife.<br /><br />And I'll always be able to sing "I Am the Very Model of a Patient in the Hospital," remembering the hilarious evening she and I spent putting it together!augmentedfourthhttps://www.blogger.com/profile/05250821027566637334noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-17926501600776250422009-12-08T22:44:10.504-05:002009-12-08T22:44:10.504-05:00Thanks for the great post. This part really hit ho...Thanks for the great post. This part really hit home for me-as I am going through adding more and more meds to my routine: "That's another great part of having CF -- you can educate yourself all you want on potential side effects, but unless something is causing hemo, bronchospasm, or serious allergic reactions, you're not likely to get the go ahead to cross it off your routine. And this makes sense, because really at the end of the day being able to clear the lung goo is more important than the sound of your voice, reducing inflammation trumps the desire to get to sleep at a reasonable hour, and fighting pseudomonas matters a whole lot more than that perfect summer tan. It's not rocket science or self-torture; it's just that the benefits outweigh the costs". <br />I love reading your posts!Marcihttps://www.blogger.com/profile/11788347295911765399noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-16117063365068751422009-12-07T00:35:53.522-05:002009-12-07T00:35:53.522-05:00Piper,
Is it the reminders of our own mortality ...Piper, <br /><br />Is it the reminders of our own mortality that heightens our sense of living? Or is there simply comfort in understanding the journeys of others that we might perhaps find our path better? Or is it simply a sense of acceptance and belonging?<br /><br />Thanks for putting into words that which I couldn't. ~JulietJuliet Pagehttp://www.julietpage.comnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-86612695444761694732009-12-06T13:53:46.105-05:002009-12-06T13:53:46.105-05:00couldn't have said it better myself. As much ...couldn't have said it better myself. As much as writing "breathe easy" sucks massively, being able to say "see you on the other side" or "Wait for me" is ten times better. <br /><br />I hate that we have lost so many friends before the winter season has even officially started. I sit here scared that I will loose more. Or that I myself will loose. It's terrifying. But thankfully I have all of you to talk to and we all feel the same way.<br /><br />I love each and everyone one of you!!!!!!Amyhttps://www.blogger.com/profile/12354849302798817593noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-31697699664695760122009-12-06T12:17:12.253-05:002009-12-06T12:17:12.253-05:00Nice analogy. I like. :)Nice analogy. I like. :)whatsherfacehttps://www.blogger.com/profile/02767972427264230975noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-48907049766902998452009-12-06T11:37:59.669-05:002009-12-06T11:37:59.669-05:00Amen, you hit the nail right on the head. Thank y...Amen, you hit the nail right on the head. Thank you for putting these feelings into writing.Anonymoushttps://www.blogger.com/profile/04083710190185453271noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-62834887875963362032009-12-06T11:10:02.600-05:002009-12-06T11:10:02.600-05:00you captured what I am sure so many of us, definat...you captured what I am sure so many of us, definately myself included, are thinking. You did it in a much more interesting and eloquent way than many of us muttering F-CF LOL. Thank so much.Nicolehttps://www.blogger.com/profile/11131896596880297493noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-34374009567677876552009-12-06T10:27:06.315-05:002009-12-06T10:27:06.315-05:00What can I say...beautiful, awesome blog! Thanks!...What can I say...beautiful, awesome blog! Thanks!<br />Jen FierroAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-57461887733339298532009-12-06T10:26:28.083-05:002009-12-06T10:26:28.083-05:00Piper- You always know just how to say it. With al...Piper- You always know just how to say it. With all the recent loss it makes me realize just how much I depended on all of you during my time with Trent. I think about the love side effect of being with him and I'm very glad that I had that chance. Thank you so much for your wonderful writing!nicolenoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-57397162618398245582009-12-06T09:23:05.068-05:002009-12-06T09:23:05.068-05:00Piper, as I sit here nebbing HTS and Amikacin next...Piper, as I sit here nebbing HTS and Amikacin next, which by the way if you've never done this it tastes pretty bad, I am reading your blog and thinking that you have once again put into writing what so many of us feel. It is difficult to lose these people(and far to often lately) but getting to know them has been worth the pain of losing them. They all have been smart, funny, sympathetic and mature beyond their years. <br />This disease is so isolating that being able to connect on line, and occassionaly in person(but don't tell the docs), is our best way of support. We learn and support each other and when we lose one, as you said, a piece is missing. It cannot be filled and we do not always want it filled as we want to remember each person for the unique individual that they were and what they were able to teach us through their experiences. Anyway, this has been long enough. I wish you the best this holiday season and that you may get that call that you have been waiting for.<br /><br />KevinAnonymousnoreply@blogger.com