tag:blogger.com,1999:blog-7924439865196022375.post2604630087933485981..comments2024-03-28T03:16:58.351-04:00Comments on A Matter of Life and Breath: Decisions, DecisionsPiperhttp://www.blogger.com/profile/01992462169607238118noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7924439865196022375.post-22705002267373445372008-12-30T21:06:00.000-05:002008-12-30T21:06:00.000-05:00Piper, I simply love your blog. You write so poig...Piper, I simply love your blog. You write so poignantly about stuff that though i am not there yet, I know I will feel the same way you do about when I am. I would (will) have a very hard time with 02, but we do what we have to do and we perserve. I think that is what this disease teaches us, really. How to get the very farthest we can without a full deck. I hope that cutting some hours and having the 02 handy when you need it is what makes the difference for you so that you can keep doing what you love and loving what you do.Shannonhttps://www.blogger.com/profile/13206878577572069862noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-70072383834072165562008-12-30T18:20:00.000-05:002008-12-30T18:20:00.000-05:00The first time I wore o2 in public, I got a lot of...The first time I wore o2 in public, I got a lot of stares and a "daaaammnn" from some idiot on the train. At that time, I thought regular o2 use was about to be part of my routine, but thankfully, it was just a rough spell. I need o2 at night and during exercise, and I have a couple of portable tanks to take with me to work, if needed. Sounds like that's about where you are, too. <BR/><BR/>In a weird way, wearing it in public is like a big huge F YOU to cf - I feel like holding my head higher, sticking my chest out, and gloating that no matter what it tries to do, CF will never stop me from doing what I want. Of course, that's only on good days, LOL. I'm glad you're doing what you need to take care of yourself. Onward and upward!whatsherfacehttps://www.blogger.com/profile/02767972427264230975noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-16084629976321316922008-12-30T11:14:00.000-05:002008-12-30T11:14:00.000-05:00I know that your decisions weren't easy to come to...I know that your decisions weren't easy to come to. I hope that your law firm is flexible enough to let you do what you need to do. 02 was an issue for me too. I hated having to wear it. HATED IT. But, I guess I just realized that I felt better when I wore it. I wish I had a fashion tip that would make that stupid plastic tube more fashionable. Maybe they make them in pink! <BR/><BR/>After transplant I saw a few ladies at my center that had masks with big, huge, adorable red lips painted on the front. It was cute! <BR/><BR/>hang in there girl!!Heidihttps://www.blogger.com/profile/07791278701579085418noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-88922697490488388232008-12-30T06:26:00.000-05:002008-12-30T06:26:00.000-05:00DO IT!!!!!! I absolutely LOVE my 4-10 hour days! ...DO IT!!!!!! I absolutely LOVE my 4-10 hour days! Being able to work 2 days then sleep in on Wednesday is a freaking godsend. My boss was VERY understanding (bosses I should say) about cutting back my hours. I too was working more like 5-9/10 hour days and running myself ragged. He said that he would rather have me here less time and for a longer period of time then have me stuck in the hospital every few months and gone for 3-4 weeks at a time. <BR/><BR/>Good luck with the O2. I was looking into portable concentrators and I could not find one for under a few grand. Super expensive and my insurance won't cover it since I have one at home already. But I don't need one for days yet I just wanted it so I could have the option of spending the night elsewhere and NOT have to lug my machine or go without O2. <BR/><BR/>Best of luck and I am glad to see that the altitude helped clear your head a bit. Hopefully breathing in all this O2 out east here keeps you thinking the same way ;)<BR/><BR/><3Amyhttps://www.blogger.com/profile/12354849302798817593noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-85189763435894469732008-12-30T00:34:00.000-05:002008-12-30T00:34:00.000-05:00Good for you Piper! Those are major decisions and...Good for you Piper! Those are major decisions and I can't imagine how difficult those must be. But I am glad that you are able to focus on your health and put things in perspective. Good luck with the discussion with work!!<BR/><BR/>Take care,<BR/><BR/>LisaLisahttps://www.blogger.com/profile/17766422197931332768noreply@blogger.com