tag:blogger.com,1999:blog-7924439865196022375.post604396236871398541..comments2024-03-28T03:16:58.351-04:00Comments on A Matter of Life and Breath: How You Met My MotherPiperhttp://www.blogger.com/profile/01992462169607238118noreply@blogger.comBlogger26125tag:blogger.com,1999:blog-7924439865196022375.post-21204444579056766482010-03-16T21:53:28.482-04:002010-03-16T21:53:28.482-04:00Wow. How nicely said. I am a parent of a 1 year ol...Wow. How nicely said. I am a parent of a 1 year old diagnosed with CF and I cried through it all. You all have such strength!<br />Best wishes and health of all of you!<br />SandyAnonymoushttps://www.blogger.com/profile/14866301344121804784noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-42964594923968432062010-03-15T00:42:10.813-04:002010-03-15T00:42:10.813-04:00Hi Piper's Mom. Thanks for the blog entry. I...Hi Piper's Mom. Thanks for the blog entry. I only "met" Piper recently as my CF wasn't diagnosed until I was in my 40s. I'm glad that she has you and her family rallying around her to help her through this next stage of CF. Piper is an amazing positive role model for all of us! And clearly she gets some of that strength from you. {{{hugs}}} to you all. ~JulietJuliet Pagenoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-89810943928521928742010-03-14T16:22:08.218-04:002010-03-14T16:22:08.218-04:00Thank you for sharing your thoughts with us. I enj...Thank you for sharing your thoughts with us. I enjoyoed reading your entry. Ienjoyed meeting you at the event at Artisan Food Store a month ago. My husband and I are traveling in Greece & Turkey now. Got to do it before the decline. I feel like I'm on a bit of a race. LaurenLaurenhttps://www.blogger.com/profile/13276138327951561009noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-32465614685673950372010-03-13T23:25:40.644-05:002010-03-13T23:25:40.644-05:00Fabulous post, though not surprising - Piper obvio...Fabulous post, though not surprising - Piper obviously gets her gift honestly! She looks a lot like you, too - also a compliment :o) As a young-20-something with CF and similar interests, I look up to your daughter more than I think she knows. Kudos on raising such an intelligent, engaged, tenacious and eloquent young woman! <br /><br />Thanks for sharing your perspective. My parents read Piper's blog from time to time, but I'll be sure to have them read this post, as well. Please know what a gift you are giving your daughter in the delicate balance of your *collaborative*, honest-but-optimistic support. I have been blessed with the same from my parents and am only now beginning to learn what a rare and precious asset it is.<br /><br />P.S. I see that you are a Political Science professor, which just gives you that many more cool points in my book. :o)Jessicahttps://www.blogger.com/profile/13257021143930525182noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-18121044653064747432010-03-13T15:19:54.234-05:002010-03-13T15:19:54.234-05:00Hi Kathleen,
Just like Piper's, what a beautif...Hi Kathleen,<br />Just like Piper's, what a beautiful and inspiring blog post. I loved reading it, thanks!<br />Jennifer FierroAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-62411807294585737002010-03-13T11:25:28.594-05:002010-03-13T11:25:28.594-05:00I loved this! We CF mom's do have a connectio...I loved this! We CF mom's do have a connection, I feel it so often when I read blogs and posts on Cf.com. <br /><br />I, too, would read if you started your own blog!<br /><br />I've long looked to Piper for inspiration and hope that my Emily can some day live out her dreams (she's shaping up to be a good little debator at age 4...maybe she'll follow Piper into law!).<br /><br />Thanks for sharing your thoughts!Tami Draxlerhttps://www.blogger.com/profile/04411463208279827415noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-33316566898881372942010-03-13T10:42:39.936-05:002010-03-13T10:42:39.936-05:00Great title line, and as others have said wonderfu...Great title line, and as others have said wonderful writing style. You raised a great daughter (I'm sure you hear that all the time), her strength and wilingness to share her experiances is a huge help to people like myself.<br /><br />You should be very proud!James Fahrhttps://www.blogger.com/profile/11454790754783331298noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-28131451863211537352010-03-13T10:20:47.071-05:002010-03-13T10:20:47.071-05:00Thank you for sharing with us
Kathleen. This trul...Thank you for sharing with us<br />Kathleen. This truly is our normal. I have a 17 yr old daughter with CF. Never thought to think of CF as milestones. It makes sense. You have one amazing daughter. I hope you write more.<br /><br />Cheryl (CF.COM)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-80655428165736405692010-03-13T09:56:17.059-05:002010-03-13T09:56:17.059-05:00Thank you Kathleen. I'm only a few years in...Thank you Kathleen. I'm only a few years into this journey and my daughter is only four, and yet I think I understand so much of what you are saying. I totally get that despite the meds and the hospital stays (and the feeding tube we already deal with), etc. our girls are normal, wonderful, beautiful... Normal is what you have, what you get used to. You can grieve the lack of normal for awhile, but ultimately you accept where you are and you seek it to become the best where-you-are that you can have.<br /><br />I hope YOU have a support system in place for when Piper gets her beautiful gift of a new pair of lungs. I have a feeling that the newest journey will be just as tough on you as well. <br /><br />Thank you for your writing. You and Piper share a skill in eloquence.HeatherWhttps://www.blogger.com/profile/11898104574012465802noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-51489204578354238262010-03-13T09:09:02.907-05:002010-03-13T09:09:02.907-05:00I don't have to tell you what a wonderful daug...I don't have to tell you what a wonderful daughter you have, but I will. Piper is an outstanding example to us all. She has shown us how to accept life, and live it with grace & dignity.<br /><br />I'm grateful to her for sharing her perspective of life with CF. Thank you for sharing yours as well. <br /><br />StaceyJust mehttps://www.blogger.com/profile/17924805774892240310noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-26002419539812616882010-03-13T08:01:28.333-05:002010-03-13T08:01:28.333-05:00Beautifully written... made me tear up a bit, I th...Beautifully written... made me tear up a bit, I think most cfers know how hard our moms work to help us :) Maybe that is why everyone I have dated has said I feel like I am dating 2/3 of you. 2 being me and my mom. 3 being me, my mom, my puppy :) Oh well package deal right.Aftonhttps://www.blogger.com/profile/09977110738943833172noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-10435210598559188302010-03-13T01:12:32.736-05:002010-03-13T01:12:32.736-05:00Kathleen
I too enjoyed your blog. I am the mom o...Kathleen<br /><br />I too enjoyed your blog. I am the mom of a 3 year old with CF and oftentimes feel that no one except other CF moms understand. I so identify with the part about hotel rooms, we have had the desk called on us more than once while doing the vest. Blessings to you and Piper.<br /><br />ChristineAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-40222367982902525672010-03-13T00:44:44.103-05:002010-03-13T00:44:44.103-05:00So glad to meet you, mother! Behind every good CF...So glad to meet you, mother! Behind every good CF'er there's a Mom who tries to make your life as normal as possible...while taking extra good care of you when you're not looking. CF moms can be sneaky! You helped me to remember my blessing--my mother.Sherrinoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-62241433104018628802010-03-12T23:00:25.431-05:002010-03-12T23:00:25.431-05:00Hi Kathleen, thank you for writing that. We have a...Hi Kathleen, thank you for writing that. We have already passed many of the milestones you wrote about and my daughter is only 9. We are currently looking at a resection..I can only imagine the what you all have been through.<br />Thanks again for writing this. Piper is blessed.Debbiehttps://www.blogger.com/profile/17030774681941279099noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-36749203839317367532010-03-12T22:44:11.357-05:002010-03-12T22:44:11.357-05:00I also want to thank you. I would also be a fan if...I also want to thank you. I would also be a fan if you started your own blog. Piper is very blessed to have such great parents.I love reading about anything Piper write's about. She has the gift of grace. <br />Much love,KarlaKarla/ Maksnananoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-30111487787667412992010-03-12T21:29:53.350-05:002010-03-12T21:29:53.350-05:00What a lovely post. I think I will pass it on to ...What a lovely post. I think I will pass it on to my own parents to have a read. :)Shannonhttps://www.blogger.com/profile/13206878577572069862noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-68944782188528376592010-03-12T21:17:41.347-05:002010-03-12T21:17:41.347-05:00Kathleen,
Thank you so much for your post. My beau...Kathleen,<br />Thank you so much for your post. My beautiful 17-year-old daughter has been told she needs a transplant and we are in the midst of the evaluation process. Much of the time, I feel as if I am groping in the dark. But, knowing that others are out there believing in a happy ending somehow helps me believe I can do this too. Thanks, again... And, Piper... Thanks for lending your mom the space. {{Hugs to both of you-- Donned with gloves, gowns and masks, of course...}}Christyhttps://www.blogger.com/profile/06610740137151978522noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-16673737835060018362010-03-12T20:32:09.896-05:002010-03-12T20:32:09.896-05:00Thank you Kathleen. Your perspective gives me str...Thank you Kathleen. Your perspective gives me strength to endure any more of the milestones that may, or may not, be thrown at us. So we wait, while we do everything we can to have our say in the outcome. Best wishes to you and Piper on this latest journey.ktsmomhttps://www.blogger.com/profile/04564224481371156822noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-3463025060602987512010-03-12T20:25:48.952-05:002010-03-12T20:25:48.952-05:00Welcome to the blog world Kathleen! What a wonderf...Welcome to the blog world Kathleen! What a wonderful post! I am going to send the link to my mom, who was my "primary care partner" also! She will enjoy reading it. THANKS!Heidihttps://www.blogger.com/profile/07791278701579085418noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-67378039071706645982010-03-12T19:38:49.737-05:002010-03-12T19:38:49.737-05:00Thank you Kathleen! What a wonderful blog post fro...Thank you Kathleen! What a wonderful blog post from one CF mom to another. I am two years into Lucy's CF journey and I have also begun to think of this CF-life we lead as "normal" and I just try to roll with the punches, as does Lucy. I try create this wonderful normalcy and excitement around CF, trying hard not to make it the focal point of our lives, but the reality of CF is ours. It is there everyday. A lot could be learned by your journey as a CF mother and caretaker, from point A to point B. If you just so happened to have your own blog someday, know that I would be a fan! Thanks for your guest appearance on Piper's blog and for your experienced insight. You are valuable in this community and I hope to see more of your writings in the near future! <br />Hugs from California, <br />Kacie (AKA Lucy's Mom)Lucy's momhttps://www.blogger.com/profile/06126095986715998848noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-77884466121611671682010-03-12T19:35:16.589-05:002010-03-12T19:35:16.589-05:00Thank you, Kathleen, from one CF mom to another. ...Thank you, Kathleen, from one CF mom to another. <br /><br />Your daughter's contribution to cf.com has been very meaningful to me, and now I see where she gets her gift for words. She has been blessed with an amazing mom. <br /><br />~harriett (hmw- cf.com)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-35974377384331953492010-03-12T19:25:57.782-05:002010-03-12T19:25:57.782-05:00Wow, Kathleen, you look great and what a wonderful...Wow, Kathleen, you look great and what a wonderful first blog. You are in my thoughts and prayers daily. Wish I could come hold your hand or fix you a wonderful meal. Thanks for taking care of Ann and Jordan when they visited.<br />Love, JudyJudynoreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-6627798222859414832010-03-12T19:15:10.179-05:002010-03-12T19:15:10.179-05:00What an awesome blog :) I had my very first 'C...What an awesome blog :) I had my very first 'CF panic attack' over RSV Wednesday. RSV?! Small potatoes when you consider what you've been through as Piper's Mom. I only hope that I can find my strength, as you have found yours, and be just as strong as you are, when each time arrives for a CF milestone in my daughter's life. <br /><br />Thanks again for sharing this. I really did take a lot from it.Chelseahttps://www.blogger.com/profile/18326291863252010459noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-14951984899261300802010-03-12T19:08:38.564-05:002010-03-12T19:08:38.564-05:00Ye I second what Julie said! You write just as we...Ye I second what Julie said! You write just as well as Piper does!!!! <br /><br />I am passing this on to my mom so she can read it :) I hope I get to meet you one day. I adore your daughter :)Amyhttps://www.blogger.com/profile/12354849302798817593noreply@blogger.comtag:blogger.com,1999:blog-7924439865196022375.post-54729670977129741952010-03-12T17:58:41.733-05:002010-03-12T17:58:41.733-05:00I know where Piper gets her gift for writing. You...I know where Piper gets her gift for writing. You also have the ability to clearly convey your feelings. As a fellow CF mom I thank you from the bottom of my heart! The insights you both share are priceless.Juliehttps://www.blogger.com/profile/04434380342943593408noreply@blogger.com