Anyway, here are some of the major CF milestones that defined my year. Feel free to make this interactive and add some of your own to the list. Good, bad, ugly...let's hear it all in the spirit of a big collective fuck you to this disease from all of us who survived another year.
- A year ago today, tx wasn't even on my radar. That is totally unbelievable to me, but it's true. January 2008 was the first time my doctor brought up the possibility of me being evaluated. Total sucker punch at the time, but I'm honestly grateful now for her foresight. Still, that has to be one of the hardest milestones I've ever reached.
- February/March: First ever partial airway collapse (result of prolonged pnuemonia) and subsequent first ever bronchoscopy. The best thing to come out of this was the series of totally drugged emails I sent from the recovery room as I came off the anesthesia, courtesy of my mother smuggling in my blackberry. I emailed friends, I emailed family, and yes - I emailed work.
- In April I got my appendix out. Ironically this was the only hospital admission I had this entire year, despite being on IVs a total of 5 times for 3-4 weeks each.
- May was my first meeting with the tx team. They apparently thought I was sane enough to go through the rest of the eval after that initial screening. Go figure.
- July/August: Faced -- and survived -- the actual tx evaluation. Honestly I feel like this was SUCH an accomplishment, although I know the eval is really just a drop in the bucket. But it was my drop, my bucket, and it felt huge to me.
- Sampson joined my family in October! This was so the best thing that happened to me this year. He has a life expectancy of 12-14 years, meaning that he and I should be together until I'm about 40. You do the math, but I'm pretty sure this means CF is gonna have to wait around on me for a while.
- I turned 27 on the 27th of November (also happened to be Thanksgiving), making me officially 9 years older than anyone ever thought I would be.
- December: Wore O2 in public for the first time on an airplane. Surprisingly, the world did not stop turning and I actually didn't feel that self-conscious. The only really annoying thing ended up being that they had taped the canula along the top of the plane somehow, so I couldn't really move my head around much. Maybe this was just United's way of telling me to work on my posture?
Wishing everyone a happy and healthy 2009.
What a busy year you had. I hope 2009 treats you well! Happy New Year to you!
ReplyDeleteFabulous!!!!!!!
ReplyDeleteI laughed out loud at the vision of you on the plane staying perfectly still so as not to strangle yourself with the tubing. Many a nights I have woken to be curled in a ball and my tubing pulled tight so can't move...odd.
Sounds like 2008 was VERY eventful!!!!! Hopefully 2009 sees less infections and NO tx!!!!! :)
What an AWESOME post Piper. I enjoyed reading it so much!!!!!
ReplyDeleteYou have had quite the year.. both terrific things and not so terrific things, but we learn from both, don't we?
I do hope that 2009 brings you tons of joy!
Just had to say this is a fantastic post.
ReplyDeleteWow! That was a great year!
ReplyDeleteI am on Aztreonam too! I love that stuff! How cute is the eflow? :) It's the little things that get us excited!
I hope 2009 finds you Healthy and Happy!
Xo
Somer