Just a note to for those who knew her, or those who never had the pleasure...
Jenn, a fellow CFer waiting for a double-lung and liver transplant up in Mass., passed away yesterday morning after an unexpected decline. She was a very cool spirit whose kindness and generosity is demonstrated in her final wish to have her own body donated to CF research. I think it says so much that a young woman in her late 20s would be so gracious as to think of others when planning her last requests. Reading Jenn's story, and knowing her these past months, I can only say that she was an inspiration to all of us considering transplant -- she fought through many complications and uncertainties without ever allowing that struggle to eclipse her own light. So fly away, rest peacefully, and breathe easy friend. And whatever comes next, I hope your journey is a good one.
Please keep her family and loved ones in your thoughts right now.
About Me
- Piper
- I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice!), and dog owner living in Colorado's beautiful Mile High City. I love all things colorful, funny, inspiring, or needlessly sarcastic. I share my city with about 2,500,000 other remarkable people, share my disease with 70,000 other beautiful souls, share my life with some unbelievable family and friends, and share my apartment with one very handsome guy and one really fat mutt with a kick-butt personality. We make it work.
About This Blog:
This blog is about me, my life, my sometimes craziness, my disease, and my current journey as a double-lung transplant recipient. It's also a celebration of everyone out there with CF (and other chronic illnesses). It's for you, inspired by you, and dedicated to you -- the community that keeps me writing, living, and breathing.
Want to Contact Me?
Please email me suggestions, thoughts, comments, or criticism. Seriously, I love hearing from you guys!
Send all emails to:
matteroflifeandbreath@gmail.com
matteroflifeandbreath@gmail.com
Search This Blog
Labels
Alternative Medicine
Anniversary
Antibiotics
Anxiety
Artwork
Attitude
Awards/Opportunities
Awareness
Bacteria
Birthday
Bronch
Career
CF Clinic
CF Community
CF Story
CFF
Challenge
Choices
Clot
CysticLife
Death
Diabetes
Doctors
Donor Bob
Drugs
Dry Run
Education
Evaluation
Exercise
Family
Fevers
Freematour
Frequencer
Fun
Fundraising
Goals
Gratitude
Great Strides
Guest Blog
H1N1
Healthcare
Heart
Hospital
ICU
Immuno-suppression
IVs
Lessons
Life
Listed
Loss
Marathon
Meditation
New Year
New York
Organ Donation
Oxygen
PFTs
Poetry
Polymyxin
Port
Positive Thinking
Post-Transplant
Prednisone
questions
rant
Recovery
Rejection
Research
Rock CF
Sampson
Scar
Sick Girl Speaks
Sickness
Side Effects
Solvay Cares
Stream of Consciousness
SVT
t-shirts
Team Boomer
THE Call
Therapy
Transplant
Transplant Clinic
Treatments
Vertex
Waiting
Weight
Writing
Links/Blogs about CF and Transplant
Subscribe to:
Post Comments (Atom)
what a nice post about jenn. She will deffantly be missed.
ReplyDeleteI hope her family and friends find peace during this difficult time.