I've come to a conclusion:
The worst thing about writing a health blog is that when you're not sick, there's never much to report. And the best thing about writing a health blog is, well, when you're not sick and there's really nothing to report.
Life with CF is funny like that.
Anyway, as you might have guessed from the opener, I'm not sick and there's really not much to report. The weather in NYC is getting warmer, it's almost Spring and with it comes the oh-so-exciting end to cold/flu/sinus infection season. Seriously, I am so so happy about that. I also love that I'm feeling healthy right now and able to enjoy the brisk but sunny weather with my puppy. It's been far too long.
The one thing I will say about CF is that you learn to really appreciate feeling healthy. I think one of the reasons the 6 weeks of IVs wasn't really too tortuous was really just b/c it felt so damn amazing to have 6 weeks of freedom from feeling really sick. And now that they're over AND I'm feeling healthy. . . well, let's just say I'm making the most of this weekend. Last night I was out with work friends, today brunch with my best guy friend, a lazy stroll together around TriBeCa, fun in the dog run, and then a birthday party this evening. But tomorrow is the real coup de grace - brunch and an afternoon at the Metropolitan Museum with my sister. The Met is something I don't get out to all that often but that I absolutely love everytime I actually do, and it has an African textile exhibit right now that we both really want to go see. (By the way, for those who don't know my sister, she is an AMAZINGLY talented high-end fashion designer who is currently the sole designer for a new fashion line that was started by her entrepreneur friend Max and uses fabrics from Kenya. Check it out at www.sunony.com! It's sold in NYC, LA, and Paris.)
Imagine, a whole day of wandering around, taking in one of the best art museums in the country, and not having to stop every five minutes because of exhaustion and/or breathlessness! Sounds amazing, doesn't it?
Knowing the complexities of relatively severe-stage CF (yeah, I admitted it), I'm sure I'll be back on the blogging bandwagon soon enough. Until then though, I hope you guys will forgive me if I take a much needed break to enjoy the rest of my life.
About Me
- Piper
- I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice!), and dog owner living in Colorado's beautiful Mile High City. I love all things colorful, funny, inspiring, or needlessly sarcastic. I share my city with about 2,500,000 other remarkable people, share my disease with 70,000 other beautiful souls, share my life with some unbelievable family and friends, and share my apartment with one very handsome guy and one really fat mutt with a kick-butt personality. We make it work.
About This Blog:
This blog is about me, my life, my sometimes craziness, my disease, and my current journey as a double-lung transplant recipient. It's also a celebration of everyone out there with CF (and other chronic illnesses). It's for you, inspired by you, and dedicated to you -- the community that keeps me writing, living, and breathing.
Want to Contact Me?
Please email me suggestions, thoughts, comments, or criticism. Seriously, I love hearing from you guys!
Send all emails to:
matteroflifeandbreath@gmail.com
matteroflifeandbreath@gmail.com
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I love boring blog posts!!! :) Keep it up and have a wonderful time with your sister. Take pics. :)
ReplyDeleteOH, btw the link didn't work for me. Wondering if it's a bad link, or if it's my Safari web browser that's the cause??
ReplyDeleteI am so glad you are feeling well. I checked out the website! WOW! The fabrics are amazing, as are the designs. Kudos sis!
ReplyDeleteI am so glad you are feeling so well! Take this time to enjoy the most of life!!
ReplyDeleteWOHHO!!!!!!!!!!!!!! I am so flipping happy for feel so good!!! That's awesome!!!!!!!
ReplyDeleteClothes look great :)
Enjoy the Met! I have been there only once but I adore it! I need to go more often :)
<3
YAY!!! Boring healthy posts are the best!!
ReplyDeleteI love the Met! Have so much fun!
I'm so happy to hear you are feeling well Piper!
ReplyDeleteDid you switch up your routine at all or did the meds just work their magic?
Keep it up with the boring posts!
Ronnie
Another funny thing about life with CF: you spend so much time being sick that when you finally DO feel better, you want to take full advantage of that "health", so you pack your days full of activities you've been unable to do for so long, hoping that the very act of doing them won't land you right back at being sick again.
ReplyDeleteI can never seem to find the right balance between living my life out loud and holding myself back to preserve that "healthy" time, to hang onto it for as long as possible. But what good is health if we can't enjoy it?
I hope you are more successful than me at finding that balance, but in the meantime, enjoy your freedom, live out loud, have a blast!
Oh so glad to hear you're feeling good. I love that you are enjoying every minute, everything that you've done and have planned makes me sick with jealousy and self reproach for squandering my days!
ReplyDeleteI'm so happy for you and hey the clothing line sounds amazing, def going to check it out.
Yay for boring!!! Hope you stay that way for a long time :)
ReplyDelete