Since you came along, you sexy things, you.
Alright, seriously, which one of my readers is secretly some sort of magical long-distance healer? I really want to know, because I've got some major jobs out there for you, whoever you are . . .
Honestly and completely without kidding, my fevers ended the night I posted my all-encompassing symptom dump. And no, lest you worry that my body is any less dramatic and attention-hoggish than the rest of me, they did not just fizzle out and go away. Oh no. In true Piper style these suckers decided to go out with a bang -- a 103.5 degrees at 3 am bang, to be precise, complete with coughing fit and, well, that thing that happens to CFers when they cough too much and drank three Boost plusses the night before. Um, yeah. Thanks so much for that friendly goodbye, fevers from hell. Love you too.
But, since that night I've been fever free. Which is not to say completely healed, but definitely on the mend! The really amazing part is that my doctor called yesterday and my white blood cells are back to normal and inflammation indications in my blood labs have also decreased to the point where they feel comfortable letting me STOP the IVs. That's the fifth time I've said those words in 2009 and let me tell you, it never stops feeling awesome.
My main complaint (because, hey, we can't be too cheerful over here . . . or can we?), is basically that I'm still pretty sore. I have an ultrasound this afternoon to see if my spleen has gone back down to normal, but I think my body's just been through the ringer so much lately that it's a little beaten down, much as I hate to admit it. I'm trying to silence my inner drill sergeant for a few more days and keep to mild walks (shouldn't be too hard considering I'm still sleeping several times a day), but the big problem is that my vest HURTS. I mean seriously guys. I'm not a fan of pain meds because I hate how they make me feel (same with anti-nausea, this should be interesting post-tx . . . ), but this is bad. I don't think it's the lung collapse, because frankly that happens all the time and I don't have too much trouble powering through it. This, on the other hand, is all over, achey, evil pain. I'm still doing the vest 3x a day for 30 mins (lungs, you owe me AT LEAST a month of health for this one!), but I'm having to do it at a way lower frequency than normal, and even then it's just barely tolerable. Can anyone PLEASE offer some suggestions about ways to make the vest a little easier to handle during serious viral pain? I tried layering soft clothing, but that only made me hot, sweaty, and itchy. Gross.
Okay, so now thaat I've given you enough nasty visuals to ruin even a cystic's appetite (why should I be NPO alone?), I'd like to just end by letting you all know how seriously grateful I am for the good thoughts, healing vibes, prayers, intentions, and sweet comments from all of you. I seriously feel tons better without those nasty fevers hanging around, and though I know it's baby steps back to where I want to be, I can't even express how amazing it will feel to be IV free, fever free, and hopefully soon, pain free. I'm going to be riding my new bike all over Manhattan and catching up on all the summer sun I've missed, big time.
- I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice!), and dog owner living in Colorado's beautiful Mile High City. I love all things colorful, funny, inspiring, or needlessly sarcastic. I share my city with about 2,500,000 other remarkable people, share my disease with 70,000 other beautiful souls, share my life with some unbelievable family and friends, and share my apartment with one very handsome guy and one really fat mutt with a kick-butt personality. We make it work.
About This Blog:
This blog is about me, my life, my sometimes craziness, my disease, and my current journey as a double-lung transplant recipient. It's also a celebration of everyone out there with CF (and other chronic illnesses). It's for you, inspired by you, and dedicated to you -- the community that keeps me writing, living, and breathing.
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