last day of ivs and first day of freedom. hot showers, extra hours, maybe time to stop and smell the flowers.
not roses though. i'm sick of those.
having trouble accepting some of the little things that i'm supposed to take without question. i worry about stuff that doesn't seem to bother anyone else, like what i'll do when i'm suddenly not seeing my cf doctor anymore. feeling kind of like some overgrown adolescent (but then again, who doesn't, really?) because of all this change and my reaction to it. it's almost physical, or i'm sure it would be if there were energy left to have a physical reaction. pages and pages and pages of journal filled with . . . thoughts? questions? whining? i'm not even sure where the deep musings end and the complaining begins anymore. and in the end maybe that's the kind of insight illness give us: the freedom to take ourselves way too seriously.
people all around telling me to just be patient. i want to tell them that i'm the ultimate patient -- 28 years and counting. patience is a virtue, i guess, but lately it seems like patients are just a burden. and i'm so sick of all the waiting: waiting rooms, waiting lists, waiting around, waiting to exhale. i've become a cliche or a sleight of the tongue -- a sick patient who is sick of being patient.
and i know i'm one of the lucky ones.
i'm so lucky to be alive, lucky to have friends and family who support me, lucky to have healthcare, lucky to love my doctor, lucky to have lungs that can choose to work when they feel like it, lucky to have drugs to keep the monsters at bay -- my own personal three-week cootie shot. so very, very lucky to have time left to wait.
it's kind of a thin line between lucky and sucky, when you think about it.
and so tonight i'll keep my vigil, count my blessings, and fall asleep to the whoosh of the oxygen concentrator once again. and tomorrow i'll do more of the same, only different. because each dawn is a new day, and patient's is an underrated state of mind.
- I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice!), and dog owner living in Colorado's beautiful Mile High City. I love all things colorful, funny, inspiring, or needlessly sarcastic. I share my city with about 2,500,000 other remarkable people, share my disease with 70,000 other beautiful souls, share my life with some unbelievable family and friends, and share my apartment with one very handsome guy and one really fat mutt with a kick-butt personality. We make it work.
About This Blog:
This blog is about me, my life, my sometimes craziness, my disease, and my current journey as a double-lung transplant recipient. It's also a celebration of everyone out there with CF (and other chronic illnesses). It's for you, inspired by you, and dedicated to you -- the community that keeps me writing, living, and breathing.
Want to Contact Me?
Please email me suggestions, thoughts, comments, or criticism. Seriously, I love hearing from you guys!
Send all emails to:
- ► 2013 (30)
- ► 2012 (36)
- ► 2011 (42)
- ▼ February (7)
- ► 2009 (105)
Alternative Medicine Anniversary Antibiotics Anxiety Artwork Attitude Awards/Opportunities Awareness Bacteria Birthday Bronch Career CF Clinic CF Community CF Story CFF Challenge Choices Clot CysticLife Death Diabetes Doctors Donor Bob Drugs Dry Run Education Evaluation Exercise Family Fevers Freematour Frequencer Fun Fundraising Goals Gratitude Great Strides Guest Blog H1N1 Healthcare Heart Hospital ICU Immuno-suppression IVs Lessons Life Listed Loss Marathon Meditation New Year New York Organ Donation Oxygen PFTs Poetry Polymyxin Port Positive Thinking Post-Transplant Prednisone questions rant Recovery Rejection Research Rock CF Sampson Scar Sick Girl Speaks Sickness Side Effects Solvay Cares Stream of Consciousness SVT t-shirts Team Boomer THE Call Therapy Transplant Transplant Clinic Treatments Vertex Waiting Weight Writing