1. Your name (first, first/last, or pseudonym acceptable), age, and a picture;
2) Your story, however you choose to tell it (limited to a few paragraphs, please!);
3) A few of your personal "CF statistics" (be creative: age of diagnosis, mutations, GS team name, etc).
4) Email the above to email@example.com
Poetry, fiction, personal essays, creative works of any kind -- let's show ourselves (and the world) that CF stands for CREATIVE FORCE!
Today's first (and very special) guest blog is from a dear friend and fellow CF/transplantee. Christy is a force in the CF community -- there's really no other way to describe her. She is also, as you'll read for yourself, a wife, a mother, a sometime photographer and photoshop guru, a blogger, and a fashion forward super mama. Or, in other words, she's totally awesome. But don't take my word for it, see for yourself.
Community Faces: Sounds from the Underground
Name: Christy Hamilton
CF Statistics: Survivor of living-lobar lung transplant and living-donor kidney transplant; married; 17-year-old (and absolutely beautiful!) daughter.
I was born in 1970 to a wonderful, loving family. After a diagnosis of failure to thrive, I was tested for CF at 16 months of age. That test showed that I didn't have CF, but over the years, things got worse, and after seeing a specialist hours from home, I was finally given the diagnosis of CF at the age of four. I don't remember my childhood being different than anyone else's except for some chest pt daily and enzymes with meals to digest my food. I was a cheerleader in high school, an aerobics instructor, and a lifeguard in the summer months.
My first hospitalization for CF wasn't until the age of 23 after a bout of the flu that led to pneumonia. I was in nursing school at the time pursuing my dream of helping others. Marriage, graduation, a new nursing career, and giving birth to my beautiful, healthy baby girl all followed.
At the age of 28, I developed an infection called Mycobacterium Abscessus. I deteriorated from that so fast and needed a lung transplant at the age of 31. Both of my lungs were removed, and I received a lobe from my mom and another from my uncle. I needed a kidney transplant seven years later, and my mom was also my donor for that. She has given me life three times!
Today, married to my second husband Jason and having lived 11 1/2 with my new lobes and 4 1/2 years with my new kidney, I am loving life! I remember asking my doctor when my daughter was five if he thought I would live to see her graduate from high school. He said that he absolutely thought I would. She graduates in 13 months, and you better believe I plan on being right there with her! God has blessed me in so many ways! Raising money for the Lung Transplant Foundation, which helps fund research to extend the lives of those with lung transplants is where my focus is regarding charitable work. Getting a lung transplant recipient off the table isn't enough!!!