Dear Readers, Followers, Lurkers, Commentors, Visitors, and All-Around Beautiful People:
First of all, on behalf of Piper, Sampson Bear the Dog, Piper's Family, and everyone else who makes this blog possible, we want to apologize for the recent lack of postings. Please rest assured that, despite the gap, our current mission remains the same as always: to bring you the most up-to-date anecdotes, randomly charming musings, and (strangest of all) true stories of life with CF and lung transplant -- and everything in between! Please also know that the vote is in on blogs with the most amazing, loyal, and forgiving reader base and we are delighted to announce that you all have won the prize, hands down. Congratulations from Piper and all of us!
Unfortunately, as we begin this new year of blogging and being, we do so without the help of one of our crucial team members thus far. As some of you may know, our beloved Donor Bob, whose breath and spirit proved invaluable not just to this blog but to all the experiences, moments, and people behind it, has moved on to greener pastures. Donor Bob graced us with his presence for 3 1/2 years, during which time he enabled Piper to do "Amazing Things" such as return to school for a master's degree, watch some of her closest friends begin families, celebrate her parents' 40th anniversary, turn 30, and meet the love of her life. Now if that's not a gentleman, I don't know what is. Sadly, Donor Bob fell ill early in 2013 and simply never recovered, despite aggressive treatment, to the point where we finally said our goodbyes on Christmas, December 25, 2013. May we always remember him with love and gratitude.
And now for our happy news: Welcome Donor Nick!
We are excited to welcome Donor Nick to the team after his miraculous and perfectly timed entrance into our lives this Christmas Day. (Piper's side note: I actually went into surgery on Christmas around 6:30pm and got out about 12:30am on the 26th, which also happened to be my parents' 43rd wedding anniversary.) Donor Nick has bestowed upon our girl two beautiful new lungs that apparently were so large they had to be "stuffed" in there like a couple of Christmas hams. We'll take it. Donor Nick, thank you for joining our wonderful, chaotic, crazy, beautiful lives. We are, as we remain with your predecessor, eternally grateful for the gift of Life you brought us through your Christmas Day miracle.
It goes without saying that we are blessed beyond measure by this new addition -- and it shows. Piper is recovering well, though still in the hospital in a pulmonary "step down" unit that affords more personalized nursing care. The doctors say the only thing keeping her inpatient are the chest tubes, which are taking a longer time to "dry up" than they did after her first surgery. Much of this is par for the course on second transplants, which tend to be messier business because of scar tissue and other complications. Thankfully our faith in the medical team never waivers -- we know we are getting some of the best care in the world and feel very much at peace with where we are today. Although Piper reports that she would really like to be reunited with that shaggy little mutt of hers one of these days. In good time, Piper. In good time.
So there you have it, friends and loved ones: all the news that's fit to print. And As we gear up for a big year in 2014, please know that we would be honored and delighted if you would continue to share the ride.
Sincerely,
Piper, Sampson, and All of Us
About Me
- Piper
- I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice!), and dog owner living in Colorado's beautiful Mile High City. I love all things colorful, funny, inspiring, or needlessly sarcastic. I share my city with about 2,500,000 other remarkable people, share my disease with 70,000 other beautiful souls, share my life with some unbelievable family and friends, and share my apartment with one very handsome guy and one really fat mutt with a kick-butt personality. We make it work.
About This Blog:
This blog is about me, my life, my sometimes craziness, my disease, and my current journey as a double-lung transplant recipient. It's also a celebration of everyone out there with CF (and other chronic illnesses). It's for you, inspired by you, and dedicated to you -- the community that keeps me writing, living, and breathing.
Want to Contact Me?
Please email me suggestions, thoughts, comments, or criticism. Seriously, I love hearing from you guys!
Send all emails to:
matteroflifeandbreath@gmail.com
matteroflifeandbreath@gmail.com
Search This Blog
Labels
Alternative Medicine
Anniversary
Antibiotics
Anxiety
Artwork
Attitude
Awards/Opportunities
Awareness
Bacteria
Birthday
Bronch
Career
CF Clinic
CF Community
CF Story
CFF
Challenge
Choices
Clot
CysticLife
Death
Diabetes
Doctors
Donor Bob
Drugs
Dry Run
Education
Evaluation
Exercise
Family
Fevers
Freematour
Frequencer
Fun
Fundraising
Goals
Gratitude
Great Strides
Guest Blog
H1N1
Healthcare
Heart
Hospital
ICU
Immuno-suppression
IVs
Lessons
Life
Listed
Loss
Marathon
Meditation
New Year
New York
Organ Donation
Oxygen
PFTs
Poetry
Polymyxin
Port
Positive Thinking
Post-Transplant
Prednisone
questions
rant
Recovery
Rejection
Research
Rock CF
Sampson
Scar
Sick Girl Speaks
Sickness
Side Effects
Solvay Cares
Stream of Consciousness
SVT
t-shirts
Team Boomer
THE Call
Therapy
Transplant
Transplant Clinic
Treatments
Vertex
Waiting
Weight
Writing
Links/Blogs about CF and Transplant
Subscribe to:
Post Comments (Atom)
YAY!! I'm so, so happy to hear of Donor Nick's Christmas arrival! Piper, reading your journey these past few years has made me a stronger and wiser 26yr-old Cyster. I have shared many times with people your witty anecdotes and life examples. You've helped lessen grief in my life and helped me cope through reading your detailed stories of your very personal joys, pains, victories and struggles. Thank-you for all the time, love, and devotion you have invested into our community and being a voice saying to other Cystic's, "You aren't alone!". You are a beacon shining for us all, through your humorous and always honest perspectives. I pray much strength over you and that you'll gain ground each day to be reunited with your beloved Sampson soon. Thanks for changing my life and keeping it REAL! :)
ReplyDeleteWith best hopes for amazing days ahead with Donor Nick and all you love!
Blessings,
Marlene
from North Carolina (Patient at UNC-Chapel Hill)
Oh wow. What beautiful and amazing news. Welcome donor Nick. I just knew Piper must have been busy kicking some serious CF butt!
ReplyDeleteThank you for taking the time to share this with us. I'm still tingling. Love to Piper, Sampson and all of you.
Lizzy (from Cambridge across the pond).
Dearest Piper, What a wonderful first 2014 blog entry as we bid a fond, loving, and grateful farewell to Donor Bob and a grateful land loving welcome to Donor Nick. Your writing so elegant as you share your hope, experiences, and fears that you inspire and bless everyone who reads it. I am grateful and blessed to have you as my god daughter! Much love always, XO, Doan
ReplyDeletePiper, Although you don't know me, I've been following your blog for several years (ever since reading an article about you in the American Way Magazine). I wish you a speedy recovery and all the best in your next endeavors, you are remarkable! ~ Laura
ReplyDeletefrom London UK the very warmest of wishes and hopes for a long relationship with Donor Nick :)
ReplyDeleteDear piper, I am deeply impressed by your blog, your writings, your humour its just fantastic :D . Your words are powerful and your courage inspiring. I just discovered your blog and couldn t stop reading your posts although i can t remember how i really came across your blog..not cf related anyway because that is quite unknown territory for me- would like to say a big THANK YOU for sharing your thoughts about life and all, the good the bad and the beautiful..all the best for your healing and the new lungs!!! Sending rainbowcoloured healing thoughts from vienna (austria) to you. Uma (ahem i hope you like rainbows..and if not they should appear in your favourite colour)
ReplyDeleteThank you Piper's "team" for the update as so many of us CF-ers have been watching, waiting and wondering. The warmth that surrounds you is palpable and wonderful. Piper, congratulations on a successful second transplant and wishes for a speedy recovery. I have been following your blog for a while and am looking forward to all of the adventures you'll be able to experience moving forward. Take care!
ReplyDeleteDear Piper,
ReplyDeleteI am so happy to hear you are doing so well!!!! I work for your dad (in the New Mexico office) and read your enitre blog after his "Our Christmas Day" email to us all. I think you are the most amazing person I have ever "met", and after reading your blog I feel like I kow you. You are such a strong, inspiring, wonderful, loving, caring person! Your attitude toward Life as being the biggest gift and that every moment is precious is so wonderful and refreshing! I wish you could impart your wonderful wisdom on the whole planet! Anyway, I want to say that you and your family are in my prayers and thoughts. Thank you for the update on your progress and I pray that you continue to get stronger and stronger every day. You are an inspiration to all of us! `God Bless`
Love, your new friend, Mary
What an inspirational answer to a prayer for all of us! I'm so sorry for the loss of Donor Nick to his family but what a wonderful, amazing gift he left behind! Gosh, know that you all are being sent love and light from all of us who wish nothing but the very best for you as you heal and get on with the joy of living! God bless us every one. Thanks for the update, keep 'em coming as you are able!
ReplyDeleteI am very glad to hear that you are doing well. All my love to the whole family from your Swedish nanny Eva.
ReplyDeleteThank you, Donor Nick, for keeping Piper around. There are many of us out here reading her posts even if we aren't commenting. Merry Christmas and Happy New Year, Piper!
ReplyDeleteHello everyone am on this blog to testifying about the goodness of EDUDU ZADSON TEMPLE in my life for helping me bring back my lost love in a space of 48 hours. I saw comments of how he helps people amend broken relationship and bring back lost love and decicded to let him help me also when i lost my ex 5 months ago. To cut it all short it is the evidence of his fast results that reuslted to me testifying about his good works. If you are in such situation, cry no more but contact Dr Zadson on eduduzadsontemple@yahoo.com and experience an amazing turn around in your situation...
ReplyDeleteFound your post interesting to read. I cant wait to see your post soon. Good Luck for the upcoming update.This article is really very interesting and effective.
ReplyDeleteWe have developed the site after all our positive effort Online minute timer