Wednesday, July 29, 2015

Swimming Lessons

I learned about undertow the hard way.

When I was young, probably around 5 or 6, my parents took my sister and I on vacation to one of those all-inclusive beach resorts called Kona Village. It was a childhood paradise -- the type of place where kids could run (relatively) free within the safe confines of the resort's borders, and fun in the sun with endless sand castles was just about all I had in mind. My sophisticated and daring 8-year-old sister, on the other hand, had bigger plans. And those plans involved something strange and new to my land-locked state vocabulary: the boogie board. 

For those of you who might also have grown up in Colorado (or one of the other interior "Square States"), a boogie board is the shorter, fatter version of its more sophisticated cousin, the surf board. The purpose of a boogie board (at least when you're a small child) is basically to dog paddle your way far enough into the ocean to catch one of the small, non-threatening waves and "ride" it back onto shore by lying on your belly and holding onto the board for dear life. And yes, it really is almost as much fun as it sounds. 

And so, after my father had dutifully fitted us into damp and uncomfortable life jackets and the guy at the equipment stand had demonstrated the dos and don'ts of boogie board etiquette (don't stand up on the board, do keep the board attached to your wrist at all times, don't use the board to hit your younger sister when no one's looking), we grabbed our boards, marched past the several life guards on duty, and headed bravely toward the surf. 

My dad did the first run, demonstrating beautifully how to ride a tiny wave, which would have been graceful had he not been 6'2" and trying to hang 10 in approximately 2 feet of water. Needless to say, he promptly washed up head first onto the beach, and I made a mental note: too close to the shore equals sand in the face. Lesson learned. I was ready.

Buoyed by determination and my life jacket, I launched myself into the surf and swam for the waves. When I saw one that looked suitably ginormous (a towering wall of water almost a foot and a half high!) I went for it. My board caught water, picked up speed, and rushed toward the shoreline 10 feet away. I was on top of the world! I grinned! I laughed! I raised my fist in pure, sweet, childhood victory!

I fell.

Thirty years later, I'm still not sure what happened. Most likely the wave broke, which I was not expecting, and I got tossed into water that was about 2-3 feet deep at its lowest point but that felt like the deepest, darkest ocean. My board was still attached to my wrist but now something was suddenly sucking me backward, away from where I knew the shore should be. The water pulled me toward it, dragging me under, throwing another wave into my face. My eyes burned and my mouth seemed full of salty panic when suddenly, as if from nowhere, I felt hands lifting me up. My dad removed me from the undertow, righted my board and set me back on my feet right where I had been thrashing: in shallow water, just steps from the shore. The entire ordeal had lasted less than 30 seconds; it felt (still feels, as I remember it) like hours. 

And we walked out of the ocean, together.


Childhood water sports not withstanding, I've always considered myself extremely lucky. If cystic fibrosis is my ocean, well then I think it's fair to say that I've become a master at riding the waves. I always strive to have the right equipment with me and I try to pay attention to the examples set by others. But still, every so often, it's hard not to venture too far off the shoreline, to find a wave so large you're scared to ride it, to get knocked off your board unexpectedly. These things are, in fact, a part of every life, CF or no -- all of us will at some point or another find ourselves out to sea, scared, or even flailing in the water. And some of us might also, through no fault of our own, sometimes get sucked down into the undertow of anxiety and depression. (Both of which, by the way, are common in people living with chronic or life-threatening illnesses, including CF. So much so that studies are now being done specifically focused on these issues in people with CF, and hopefully that means more discussion around a serious, and not at all shameful, topic.)

Look guys, I've struggled with anxiety and I know how tough it can be to talk about. I know the feeling of sitting in a doctor's office discussing lung function and liver enzymes and failure to thrive and thinking "what is this doctor going to think if I suddenly bring up anxiety attacks or sad thoughts in the middle of all these 'real' issues? Will I still be eligible for transplant? Will they stop listening to my complaints if they think I'm just anxious or depressed all the time? Will they think I'm crazy? AM I crazy?! I suck it up and deal with all the pills, treatments, coughing, nausea, oxygen, and [insert therapy or symptom of choice here]. Shouldn't I just be able to suck it up and deal with this depression and/or anxiety BS too?" I've been there, I promise, but I also know that depression and anxiety aren't just real -- they're completely normal. And take it from a girl who knows: if you get to the point where you're anxious about asking for help for your anxiety -- it's definitely time to reach out. 

When I capsized my board, I was wearing a life jacket and attached to a floating piece of plastic. I was surrounded by loved ones and trained professionals who knew how to help me. And yet, in that moment I felt terrified -- unable to separate the shallow water beneath me from the great depths of my imagination and certain that what had once seemed fun and manageable was suddenly dangerous and out of control. I needed help, and thankfully I was able to accept it when I saw it, in the form of a loved one's outstretched hand. He helped me stand back up, on my own two feet, because once I knew where I was and saw where I was going, I knew I could get there. I just had to take that first step. 

And we walked out of the ocean, together. 


  1. Hi piper I am one of your long time readers,I have been reading since before your first transplant!
    I checked in today to see if I should delete the blog from favorites (since no activity) and there you were ! You had written again ,I was so excited to read that you are still in the proverbial boxing ring with you gloves on !
    chronic illness is one thing which you and I have in common.
    Much love and encouragement to keep writing from your "dear reader"
    Lisa Fishe4

  2. Piper, What would the rest of us do if you weren't you? Many times pre-transplant I felt the need to be super human so nobody would question if I was, indeed, worthy of a new set of lungs. Thank you for understanding, and writing about it so eloquently.

  3. Anxiety is such an important illness to make sure your doctors are aware off. I understand how difficult it can be to talk about. Dealing with all the other illnesses and a transplant alone is more than bad enough without being anxious. You are such an inspiration, despite everything you have gone through you strength is outstanding.