So today started out normally enough, I guess. Wake up, do treatments, eat lunch, go to appointment, go from appointment directly to mandatory lung education seminar/support group, learn about immunosuppression and post-transplant infection control...you know, the usual. Certainly there was nothing this morning to suggest that this evening would be one of those "lessons in karma" kind of moments.
Which is, of course, the funny thing about karma, right? It always seems to sneak up on you.
But, I digress. Back to the story, which, as I mentioned above, begins with a fairly routine visit to my favorite hospital for an educational seminar on post-transplant living -- in this case, immunosuppression drugs. And, just to set the scene, this is the kind of seminar where CFers, COPDers, and all sorts of other lucky lungers young and old come together to learn useful facts like "DO NOT USE A LEAF BLOWER AFTER TRANSPLANT!!!" Which, to be honest, is probably not so useful for those of us living in Manhattan apartments (seeing as I have yet to encounter leaf debris in my 18th-floor hallway) but the point is: it's helpful to some people. As a CFer, though, I sometimes find that these talks are geared ever-so-slightly more towards the "rookies" of the lung-health world, and so I tend to zone out just a bit when the doctors start talking about the need to get rid of pet birds, or the emotional stress of taking tons of pills every day, or...and this is just a random example here...the many, many, many unpleasant side effects of prednisone.
Because I know everything about steroids, right?
At this point I'd like to pause and say that if you're a CFer and are unfamiliar with prednisone, congratulations. You're extremely lucky, and I'm completely jealous. In fact, I'm insanely jealous, but the insanity part is probably due to the fact that I am, in fact, on prednisone. I'm actually on prednisone all the time, but sometimes at higher doses than others -- and right now is one of those high-dose times. In other words, I'm a little bit cranky, a little bit unable to sleep, a little bit of an emotional nutjob, and a whole lot of hungry. And this last one is, of course, a good thing for a CFer, except for the fact that prednisone also tends to mess with blood sugars...which is what brings us to the next part of today's lesson.
Anyway, my mother and I sat through the very well-done and informative presentation, we listened and asked our questions, and then we started to go home. And as we walked out of the hospital, I turned to her and said what will now be known as (in)famous last words on the subject of steroids and side effects: "well, at least we know by now that prednisone never messes with MY blood sugars." And we smiled.
And literally 5 minutes later, my phone rang.
Um, yeah, I don't think I even have to finish this story. Suffice it to say that I actually laughed out loud when I was told that my blood sugar was too high -- not because it was funny, but just because it was so, um, shall we say predictable in its irony? And sure, I'll admit that laughter isn't really a normal reaction to this sort of news, but cut me some slack. After all, I am on prednisone.
Luckily it's not SUPER high, and the most likely fix is just to taper down on the drug as soon as possible, which we were probably going to do anyway, but it is a good lesson in not counting your side effects before they hatch. Not to mention a helpful reminder that no matter how much you know about CF, transplant, and life in general, you're never done learning.
And I'm pretty sure that's a good thing.
About Me
- Piper
- I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice!), and dog owner living in Colorado's beautiful Mile High City. I love all things colorful, funny, inspiring, or needlessly sarcastic. I share my city with about 2,500,000 other remarkable people, share my disease with 70,000 other beautiful souls, share my life with some unbelievable family and friends, and share my apartment with one very handsome guy and one really fat mutt with a kick-butt personality. We make it work.
About This Blog:
This blog is about me, my life, my sometimes craziness, my disease, and my current journey as a double-lung transplant recipient. It's also a celebration of everyone out there with CF (and other chronic illnesses). It's for you, inspired by you, and dedicated to you -- the community that keeps me writing, living, and breathing.
Want to Contact Me?
Please email me suggestions, thoughts, comments, or criticism. Seriously, I love hearing from you guys!
Send all emails to:
matteroflifeandbreath@gmail.com
matteroflifeandbreath@gmail.com
Search This Blog
Labels
Alternative Medicine
Anniversary
Antibiotics
Anxiety
Artwork
Attitude
Awards/Opportunities
Awareness
Bacteria
Birthday
Bronch
Career
CF Clinic
CF Community
CF Story
CFF
Challenge
Choices
Clot
CysticLife
Death
Diabetes
Doctors
Donor Bob
Drugs
Dry Run
Education
Evaluation
Exercise
Family
Fevers
Freematour
Frequencer
Fun
Fundraising
Goals
Gratitude
Great Strides
Guest Blog
H1N1
Healthcare
Heart
Hospital
ICU
Immuno-suppression
IVs
Lessons
Life
Listed
Loss
Marathon
Meditation
New Year
New York
Organ Donation
Oxygen
PFTs
Poetry
Polymyxin
Port
Positive Thinking
Post-Transplant
Prednisone
questions
rant
Recovery
Rejection
Research
Rock CF
Sampson
Scar
Sick Girl Speaks
Sickness
Side Effects
Solvay Cares
Stream of Consciousness
SVT
t-shirts
Team Boomer
THE Call
Therapy
Transplant
Transplant Clinic
Treatments
Vertex
Waiting
Weight
Writing
Links/Blogs about CF and Transplant
Showing posts with label Side Effects. Show all posts
Showing posts with label Side Effects. Show all posts
Tuesday, March 9, 2010
Subscribe to:
Posts (Atom)