I took someone very special to me out to dinner tonight for his birthday. We had been planning it for a while and I took him to a really cool authentic Japanese restaurant out here in NYC. You know, the kind of place where it takes a certain amount of courage to even order, but then you find yourself being pleasantly surprised? The food is awesome, and he loves Japanese so I thought it would be perfect.
Thought is the operative word there. I felt fine this afternoon...a little rundown but no big deal. Then I showered to get ready for dinner. Started coughing up tons of goopy junk. Gross. It got so bad I had to sit down in the shower to catch my breath. And it just kept coming and coming. My throat was on fire. I pulled myself out of the shower, made it to my bed, and proceded to spend the next 30 MINUTES just putting on jeans and a top. My hair was dripping wet, my dog was upset because something was so clearly bothering me, and I could not make it back to the bathroom without gasping. I tried to put on my O2 just to get ready and catch my breath, but honestly when I looked into the mirror and saw myself gasping, O2 canula on my face, wet hair hanging down, and now with less than 15 minutes before something I have been really looking forward to, well....I just sank down onto the bathroom floor in tears. Too much, too much. I feel like I can handle this disease most of the time, like I kind of have a grip on my own reality and have learned to excel while balancing my own needs and limitations. But seeing myself in that mirror was like looking at some sick stranger. I could not, for the life of me, connect myself with that gasping girl staring back at me.
I know most of you are waiting to hear about how I made the smart choice and curled up in bed, O2 safely on, to rest and relax my body. But I didn't. I picked myself off the floor, dried my hair, put on makeup, and went out to dinner anyway. And I tried desperately to seem okay, even at one point snapping at my wonderful companion when he asked if I was alright for the fifth time. I told him "How about I just tell you if I'm ever NOT alright, okay?" God, what a cruel thing to say to someone who was just trying to protect and help me. But I couldn't help it...all I could think about was that I had to push this CF aside, had to make it through this evening that I so wanted to make special.
Now that I'm back at home, I don't know that I regret going. I did what I did, and I'm sure in the long run going out and eating a good meal wasn't the worst thing I could do for myself. I even feel a little better now having moved some of the gunk around during the coughing. But I know something's not right, and I just hope that it's a one-time bad moment, brought on by too much excitement between halloween, the marathon, and the election. Maybe if I stay home tomorrow and really rest I'll feel better. Or maybe tomorrow I'll wake up feeling fine. CF is tricky like that.
What I do know is that tonight I was challenged by my disease. Challenged to confront my sick self and make a decision. And I made that decision, in the only way I knew how at the moment. But tomorrow, if challenged again, I hope that I'm strong enough to reach out and ask for help if I need it.
About Me
- Piper
- I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice!), and dog owner living in Colorado's beautiful Mile High City. I love all things colorful, funny, inspiring, or needlessly sarcastic. I share my city with about 2,500,000 other remarkable people, share my disease with 70,000 other beautiful souls, share my life with some unbelievable family and friends, and share my apartment with one very handsome guy and one really fat mutt with a kick-butt personality. We make it work.
About This Blog:
This blog is about me, my life, my sometimes craziness, my disease, and my current journey as a double-lung transplant recipient. It's also a celebration of everyone out there with CF (and other chronic illnesses). It's for you, inspired by you, and dedicated to you -- the community that keeps me writing, living, and breathing.
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Please email me suggestions, thoughts, comments, or criticism. Seriously, I love hearing from you guys!
Send all emails to:
matteroflifeandbreath@gmail.com
matteroflifeandbreath@gmail.com
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*Hugs* to you Piper. Wow.. to pick yourself up off the floor and go out to eat anyway. I don't know if I could have done that. The ups and down of this disease are sometimes almost too much to bare, but yet, we keep on keeping on.
ReplyDeleteI really do hope you wake up tomorrow feeling wonderful!! :)
Hugs! This disease can be too much to bear at times. But we keep on going. We have to =]
ReplyDeleteI hope you start feeling better!
BTW I found your blog from Christy's. Not sure if I have left you a comment yet or not. Anyways my name is Aimee I am 23 and I also have CF.
Wow! Every word you speak are my exact thoughts. I believe we have a lot in common when it comes to CF and life in general. I have been there and done exactly that. Please contact me by email at sbriggs@sjcme.edu and let me know how you are dealing the transplant process. I have just finished my evaluation and know the decision to be actively listed is mine.
ReplyDeleteThe decsion to have a life or to do the "smart" health-conscious thing...ahhh one that I deal with every so often as well. For some reason I almost always choose the social life. Unless of course I am super worn out and struggling. We all have our breaking points! I hope you are feeling better!!! I am just finally catching up on blogs ahh!!
ReplyDelete:)