So after a day of IVs, shorkie time, working out, and random blog musings on the waiting game, it looks like it's time to try again for new lungs. I got the call last night at 11 pm and it's not 1:20. I'm checked in, have a hospital bed in a single room (after much confusion stemming from the fact that only doubles were available and I am, of course, on contact isolation), have just gotten a lovely IV in my right hand (literally in between typing that last comment and this one), and am dressed in a stylish-beyond-all-reason hospital gown. Fantastic.
This is what I know so far: 1) the donor is neither high risk nor cardiac death, 2) the donor lungs are CMV positive -- since I am CMV negative this means I will be on anti-virals (IV and then oral) for a period after surgery), 3) there is, as always, a back up family here in need of a single lung. The resident is on her way up to talk to me about other details, but I'm guessing that if all goes well the surgery will be scheduled for the early morning hours of Wednesday, March 31. All good vibes, prayers, thoughts, and anything else positive you can send our way are of course always welcome.
I just want to say again how thankful I am for all of you. I love you all and I'll be blogging again on the flip side. No sleep 'til new lungs!
Much love and peaceful, prayerful moments,
Piper
About Me
- Piper
- I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice!), and dog owner living in Colorado's beautiful Mile High City. I love all things colorful, funny, inspiring, or needlessly sarcastic. I share my city with about 2,500,000 other remarkable people, share my disease with 70,000 other beautiful souls, share my life with some unbelievable family and friends, and share my apartment with one very handsome guy and one really fat mutt with a kick-butt personality. We make it work.
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aaaahhhhhh! are you serious?
ReplyDeletethis time it HAS to be for real! i'll be praying for you!
YAY!!!! This is it...I can feel it! Sending all of the above your way, especially prayers!!! I'll be checking for updates frequently!
ReplyDeletefunny that I have been thinking about for the past few hours...that must mean that this is the ONE! Good vibes of course are coming your way! My mom also is sending her good vibes and prayers to you.
ReplyDeleteI am excited for you and hope to read your post with updates from your recovery! :)
ReplyDeleteThis will be it for you Piper l can feel it.
ReplyDeletefuckin' a, man.
ReplyDeleteThat is really amazing. I hope that this is it, the lungs work out perfectly, and the surgery is flawless. Good luck!
ReplyDeleteYay! Brilliant news to wake up to! Fingers crossed for green light for you Piper
ReplyDeletexxx
God Bless all will be perfect!
ReplyDeleteMichele
I was so happy to wake up to this news at 5AM this morning!!! I'm sending all of my thoughts and love your way and am hoping that this is it for you! You are a strong and amazing woman and will pull through this!! Love you Cyster!!
ReplyDeleteThe best of luck to you! You'll be in my thoughts and prayers today.
ReplyDeleteAll my and Denise's thoughts and energy to you....
ReplyDeleteGood luck! I'll be praying, Piper!
ReplyDeleteAll signs are pointing to 'yes.'
ReplyDeleteYou go girl!
I'm one of those people who secretly read your blog, but never comment... But now, I want you to know I'm sending all my love your way!
ReplyDeleteCarla (23 w/CF and CFRD, still carrying the lungs I was born with)
This has got to be the real deal deal. Too funny it is 2 weeks from the day I got my lungs and I am going home today. Now i want to stay and be in front of my computer alll day. My thoughts and prayers are coming your way!
ReplyDeleteLots of hugs,
Stephanie
You are in my thoughts and hearts today, Piper! Good luck, honey!
ReplyDeleteJulie Wagoner
Yipppeeeeee!! I hope the wait is over and I will be praying for you and your family too.......
ReplyDeleteYay Piper!! I'm so excited, I hope this is the real deal. =) Sending all positive thoughts and energy your way.
ReplyDeleteYour message was in my spam box this morning, I'm glad I read it! I will be praying for you and a speedy recovery...
ReplyDeleteI am thinking about you Pip - I have a good feeling about this time!!! Can't WAIT to hear the GOOD news. Hang in there!!
ReplyDeleteYou'll do great! Thinking of you!
ReplyDeleteSo excited for you! I will be praying! =)
ReplyDeleteI saw your comment on FB last night, but I wasn't going to post, just in case it was a dry run.
ReplyDeleteI'm waking up now though, to find out that it's not!! I'm so excited for you!
Prayers have been said for an easy surgery, easy transplant, no rejection, quick recovery, and being able to spend your Summer running through the park with Sammy!
Hopefully someone will update us when you're out!
With love
Chelsea!
Thinking of you and your family Piper and sending positive vibes and prayers your way!
ReplyDeleteChrissy
Best wishes to you Piper! So excited for you today! We're out here cheering you on!
ReplyDeletepraying for you, piper...
ReplyDeletePraying, praying, praying!!! Reading this post was a great way to start my day!
ReplyDeleteIt was apparently a dry run :( A cf forum confirms (someone relieved a text from her apparently) it and so do a few other sources. I keep hoping Piper will post :(
ReplyDelete-------------------
I'm so sorry Piper :( Everything happens for a reason. All these dry runs are just making you strong enough to handle the battle that is before you, and that will come after your transplant. You're a beautiful woman, and such an inspiration. Please stay strong, and know that it will happen when it's meant too.
What incredible news. Here's to a new life!
ReplyDelete