So after a day of IVs, shorkie time, working out, and random blog musings on the waiting game, it looks like it's time to try again for new lungs. I got the call last night at 11 pm and it's not 1:20. I'm checked in, have a hospital bed in a single room (after much confusion stemming from the fact that only doubles were available and I am, of course, on contact isolation), have just gotten a lovely IV in my right hand (literally in between typing that last comment and this one), and am dressed in a stylish-beyond-all-reason hospital gown. Fantastic.
This is what I know so far: 1) the donor is neither high risk nor cardiac death, 2) the donor lungs are CMV positive -- since I am CMV negative this means I will be on anti-virals (IV and then oral) for a period after surgery), 3) there is, as always, a back up family here in need of a single lung. The resident is on her way up to talk to me about other details, but I'm guessing that if all goes well the surgery will be scheduled for the early morning hours of Wednesday, March 31. All good vibes, prayers, thoughts, and anything else positive you can send our way are of course always welcome.
I just want to say again how thankful I am for all of you. I love you all and I'll be blogging again on the flip side. No sleep 'til new lungs!
Much love and peaceful, prayerful moments,
- I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice!), and dog owner living in Colorado's beautiful Mile High City. I love all things colorful, funny, inspiring, or needlessly sarcastic. I share my city with about 2,500,000 other remarkable people, share my disease with 70,000 other beautiful souls, share my life with some unbelievable family and friends, and share my apartment with one very handsome guy and one really fat mutt with a kick-butt personality. We make it work.
About This Blog:
This blog is about me, my life, my sometimes craziness, my disease, and my current journey as a double-lung transplant recipient. It's also a celebration of everyone out there with CF (and other chronic illnesses). It's for you, inspired by you, and dedicated to you -- the community that keeps me writing, living, and breathing.
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