alright. so the doctor just came in to tell us, that after putting her to sleep, after putting her on the vent, after the epidural, they realized the lungs were in fact not good.
she's apparently now awake, off the vent, mildly jovial from the drugs and aware (though perhaps not fully comprehensive) of the fact that she did not receive a transplant today.
we'll see her within the hour. i'll let her fill in the additional details tomorrow. send her love and the strength, patience and positivity. perhaps one day, soon, with her strong new lungs we'll look back at this and laugh and thank god that she didn't get those lungs, but rather the lungs she will soon receive. those that will carry her forward.
About Me
- Piper
- I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice!), and dog owner living in Colorado's beautiful Mile High City. I love all things colorful, funny, inspiring, or needlessly sarcastic. I share my city with about 2,500,000 other remarkable people, share my disease with 70,000 other beautiful souls, share my life with some unbelievable family and friends, and share my apartment with one very handsome guy and one really fat mutt with a kick-butt personality. We make it work.
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I'm in a state of shock right now. I got Joan's e-mail first and then saw this. We are all still praying and sending good vibes Piper's way. Much love,
ReplyDelete~Meegan
I am sorry.
ReplyDeleteSo sorry. Sending my love to you all right now. We know it's going to be soon that she gets new, perfect lungs. The ones God intended for her.
ReplyDeleteso so sorry.. but you are right, God will giver the perfect lungs nothing less....
ReplyDeletestay strong...
Sending Prayers...
Ugh...If this is a test of her will, then I know she will win. She is very strong. Be peaceful, Piper....
ReplyDeleteI say that even though I can't imagine how you feel right now. I know you'll handle this bump in the road with grace like always.
Hang on to those who love you and your faithful friends from a far will send all of our love and energy your way.
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ReplyDeleteI'm so sorry Piper, I'm totally shocked that this time didn't work out. You have been put through the ringer lately. Hang in there, one of these times will be yours!!
ReplyDeleteI can't believe it. Hang in there Piper!
ReplyDeletesigh... they will come... and they will be perfect.
ReplyDeleteSo sorry to here this news for Piper and the family, but when the right ones come then she will be better off. Hopefully you can stay positive Piper, our love and thoughts are with you and your family at this time.
ReplyDelete:'-( this totally sucks.
ReplyDeleteWow. I had to resist putting my fist through the screen. Much love to you Piper. I'm so sad that this time wasn't your chance. Until the next call....
ReplyDeleteAll my love to you Piper. I was really hoping, with all my heart, that I would wake up today to different news. That you would slowly wake up today with your new lungs. Thinking of you and sending a big hug to you and your family
ReplyDeleteThis is all just a bad dream right? Piper keep your spirits up. I am so sorry to read this news.
ReplyDelete(((Piper))))....somehow the words "I'm sorry" is not adequate right now....I too am so shocked, how awful. Praying continuously for those perfect new lungs to come your way as well as for patience and strength to get through all of this. Many hugs and love,
ReplyDeleteJenn (aka JustDucky)
I am so so so so very bummed and annoyed and pissed right now...I can only imagine what you, her family and she is feeling.
ReplyDeleteI am sending all my positive vibes and love to NYC right now.
...speachless...
ReplyDelete((((Piper))))
Piper - We were out of town yesterday. Billy just called me with the news. This sucks - just sucks! I know you will get through this, too, as you continue this roller coaster of a journey. Know that through it all you are so loved. We continue to pray, despite not understanding, we continue to pray. We send lots of hugs from MN.
ReplyDeleteI am so sorry Piper...I cannot even imagine the emotional roller coaster you are on. I am still praying that this happens soon...
ReplyDeleteJust to let you know who I am...I am Christina (Crystalina0814)from the CF forums. I have been following your story and blog for a little over a year now. Stay strong!
ReplyDeleteJEEZ! I fully expected to wake up this morning and read about how wonderful you did in surgery....I can't believe this happened again. Try and stay positive (i know its probably not easy at this point) your perfect set is still out there! Once your home and settled in if you wanna talk call me. Sending you BIG hugs Cyster!! XoxoX
ReplyDeleteawww crap. Piper, I'm so disappointed for you. I'll spend the day hating this disease, and I'll be working my tail off to make sure that our big fudraiser next weekend is more successful for ever. No one should have to go through this or any of the crappy side of cf (is there a non-crappy side?)
ReplyDeleteI'll keep praying. Your time will come. You've said it before. Who wants crappy lungs, anyway? Keep strong!
Tami (izemmom on cf forums)
mom to Emily 4 w'cf
Oh piper, so sorry. Terrible. I was so happy that this was it. It will happen soon love. xoxo
ReplyDeletePiper I am sorry it did not work out this time. I will keep you in my thoughts and prayers.
ReplyDeleteunbelievable...praying hard for you all.
ReplyDeleteI'm so sorry to hear this, but if any blog entry I had to wake up to on the west coast with the title "Bad Saturday" I'd rather it be that Piper is ok and still waiting, than something went wrong with the transplant.
ReplyDeleteHang in there Piper! I know it sucks you're not waking up to new lungs today. Soon you will. I can feel it.
The poor kid, I'm so sorry! Well, next time they'll be good, for sure!!
ReplyDeleteI'm so sorry Piper! =( Keep staying positive and strong. Praying for your perfect lungs.
ReplyDeleteStill praying Piper, I am sorry.
ReplyDeleteKnow we all woke up this morning and raced to Facebook and the blog and are heartbroken to hear the news. So much love sent your way. Special hugs to you,Piper, and resounding admiration for you and your incredible family.
ReplyDeleteI'm so shocked...and very very sorry! Many people have many false alarms, some very few. However many though, your lungs will come at the perfect time! God's perfect timing! Praying you will feel much better tomorrow after the drugs and shock wear off! Sending positive prayers and thoughts your way! You are a very strong person!
ReplyDeleteWhat a bummer!! So sorry. Glad your doctors are being really careful tho. Praying for the right lungs for you!!!
ReplyDelete