- Number of IV antibiotics currently prescribed: 3
- Number of IVs discontinued today: 1 (bye bye, solumedrol!)
- Number of unfortunate talks with my doctor about abhorent feeding tube suggestion: 1
- Number of "Boost Plus" drinks subsequently consumed after said conversation: 6 (!!!)
- Number of hours sleep possible to obtain at a hospital: one of life's mysteries, but low
- Number of stupid questions (e.g., "how long have you had CF?"): 3 and counting
- Number of snarky answers (e.g., "27 years, 4 months, 13 days"): 3 and counting
- Number of blood draws: don't ask
- Number (percentage) of O2 saturation on ROOM AIR tonight: 92% (!!!!!!)
I am SO psyched about the possibility of early jailbreak. Sammy! Showers! My own bed! Sammy! Good food! Easter! Sammy! And yes, I admit I'm obsessed with my puppy. So sue me. No, really, please try it ;)
My friends have been awesome - I've had visitors constantly and a steady stream of non-crappy outside world food. Which is good because, as I mentioned above, my weight is about to become my new battlefield. I have to have a BMI of over 19 by the end of summer/early fall to avoid the dreaded tube. And considering I'm currently 18-18.5 on a really good day, that might be an interesting challenge. Although honestly, I respond really well to ridiculous goals, so here's hoping.
The other update is that I'm officially going to take some short term disability from work, but only for a few weeks, just to sort out this current infection and hopefully get things in a more stable position. And then I'm going to work out how I can stay on and be a productive member of the firm on terms that actually work with my health. I'm not worried at all about my law firm's role in this - they've proven themselves more than understanding and very wonderful in the face of a crappy situation - but the challenge is just going to be me. I need to set boundaries, I need to stick to them, and I need to start realizing that slowing down is not giving in to CF; it's another way of fighting it and NOT letting it take control completely. So I know I'm a bit thick-headed that it's taken me 27 years (and counting) to figure that out, but I swear I'm almost there. Almost.
I am hoping that if I'm not completely focused on work and health that I'll have more time/energy for the rest of my life and won't have to kill myself trying to pack that all into the weekends. So maybe this will be a way for me to take back part of my life, rather losing any more. Maybe.
But for tonight: 92% saturations on room air! Come on baby, breathe for me ;)