So first off, a couple of people have asked me lately about the arm port and how much it "shows" when it's not accessed. I thought I'd share a couple of pictures since right now seems to be the first time in FOREVER that I can actually showcase the darn thing without a needle sticking out of it. Fun, fun. Anyway, here is is, for your viewing pleasure. (And for those of you who might want to see it accessed, well, I have photos of that in my archives from 2008.)
1) Close up of the port site (keep in mind that it looks angry right now because my last IVs just ended a week or so ago):
2) View of my arm normally (notice that it's more or less invisible, unless you're looking REALLY hard for the tiny bump):
3) Me, just so everyone trusts that this really is my arm:
4) Sammybear, because really, why not?
Bonus points if you can spot the O2 tanks in that last shot, btw ;)
In other news, I'm changing up my routine a bit. Mainly I've started separating Dnase and HTS, which isn't thrilling since it makes the third treatment a requirement instead of optional. Oh well, I guess I knew I should be doing three anyways. And I've also started a trial run on the PharmaNAC fizzy tabs. I ordered a month's supply (assuming I do 1 tab, twice a day, which is what my doc recommended). I doubt I'll see much change in a month, so I'll probably need to extend my testing time. I've know some people who swear by this stuff and then others who claim they saw no change even after a year. But at this point I figure I need to keep trying everything I can. I'm not looking for a miracle cure (although if anyone's offering one, I'll take it!) but I need all the help I can get just to break this infection cycle. Blah.
And my other big news...(drumroll)...I gained 2 pounds! This might not sound like much, but considering my doctor has been encouraging me to exercise LESS just so I can preserve more calories, 2 pounds is a breakthrough! And I'm still hitting the cardio - so I managed to gain AND stay on top of my game exercise wise. Very proud of that.
I just realized this is a very self-congratulatory post. Which frankly I'm okay with, because we need those every so often. But before I go too far overboard with the me me me thing, can I just say how much some of my fellow CFers have been blowing me away lately? Seriously, I know one who has been super sick and continues to reach outside of herself to everyone else and leave encouraging comments on my blog (and others) even though I know she's going through a rough time with lots of changes, one who has been going through a hellish road with sinus surgery and still sounds less whiney than I ever do, one who lost a dear friend and decided to change it into a beautiful project to help other cystics, one who is currently on IVs and has some other serious health complications but never seems to let it get her down, one who brought her FEV1 up from the start of transplant range all the way up to over 50%, one who selflessly allowed his amazing wife to share his transplant story start to finish for the benefit of others, one who is participating in a study of an new inhaled version of an antibiotic to help all of us, one who posts amazing articles and helpful info to her blog daily, one who was brave enough to post a great glimpse into the "raw" side of CF on her blog last week, one who powers on in the face of huge obstacles from his health and from outside sources, one who I recently corresponded with who is currently putting us all to shame with his amazing exercise routine (and putting me personally to shame with his awesome attitude), and several -- both pre- and post-transplant -- who blow me away with their ability to be amazing mamas and awesome people. This is in addition to the countless other cystics I know who are just plain unbelievable. Seriously, I can't imagine a more selfless, inspiring group.
I don't mean to sound sappy, but honestly I really am in awe of these people. Especially because they're not afraid to admit, collectively, that CF sucks, that it's hard work, and that acknowledging that does not in any way make you less of a fighter. And I'm really proud to count myself among their ranks.
- I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice!), and dog owner living in Colorado's beautiful Mile High City. I love all things colorful, funny, inspiring, or needlessly sarcastic. I share my city with about 2,500,000 other remarkable people, share my disease with 70,000 other beautiful souls, share my life with some unbelievable family and friends, and share my apartment with one very handsome guy and one really fat mutt with a kick-butt personality. We make it work.
About This Blog:
This blog is about me, my life, my sometimes craziness, my disease, and my current journey as a double-lung transplant recipient. It's also a celebration of everyone out there with CF (and other chronic illnesses). It's for you, inspired by you, and dedicated to you -- the community that keeps me writing, living, and breathing.
Want to Contact Me?
Please email me suggestions, thoughts, comments, or criticism. Seriously, I love hearing from you guys!
Send all emails to:
- ► 2013 (30)
- ► 2012 (36)
- ► 2011 (42)
- ► 2010 (117)
- ▼ April (10)
Alternative Medicine Anniversary Antibiotics Anxiety Artwork Attitude Awards/Opportunities Awareness Bacteria Birthday Bronch Career CF Clinic CF Community CF Story CFF Challenge Choices Clot CysticLife Death Diabetes Doctors Donor Bob Drugs Dry Run Education Evaluation Exercise Family Fevers Freematour Frequencer Fun Fundraising Goals Gratitude Great Strides Guest Blog H1N1 Healthcare Heart Hospital ICU Immuno-suppression IVs Lessons Life Listed Loss Marathon Meditation New Year New York Organ Donation Oxygen PFTs Poetry Polymyxin Port Positive Thinking Post-Transplant Prednisone questions rant Recovery Rejection Research Rock CF Sampson Scar Sick Girl Speaks Sickness Side Effects Solvay Cares Stream of Consciousness SVT t-shirts Team Boomer THE Call Therapy Transplant Transplant Clinic Treatments Vertex Waiting Weight Writing