Sunday, January 24, 2010

Personal Health Update

Well, back on IVs starting tomorrow. I'm not feeling absolutely terrible, just coughy and tired and run-down. In other words, bad enough to want to feel better, and to know that I can't get there by myself. So I'm calling in some help, and hopefully sometime soon I can get back to feeling like this:

Yeah, yeah, I know. NO ONE looks at that photo and thinks "aww, doesn't that person look adorable!" It's okay, I'm used to playing second fiddle to this little guy.

Anyway, just wanted to give the brief health update in case I'm not around as much in the coming weeks. Assuming the antibiotics don't entirely kill what little creativity and/or brain power I have left I'll definitely try and make at least a few posts. In the meantime I'm going to focus on getting healthy and staying as in shape as possible until those new lungs of mine decide to join the party.

And I'm going to go take a really long, hot, needle-free shower.

On a more personal note, I have some amazing cousins who live in MN (um, sorry about the Vikings, Glo. If it's any consolation, I guess both our home teams lost today.). Last year Glo and her son Isaac climbed stairs to help find a cure for CF, and this year the whole family is getting in on the act. So much love and thanks in advance to Glo, Steve, Isaac, Sam, Lola, and Caleb. I'm sure I don't have to tell a blog full of CF readers how impressive it is that my family is willing to climb stairs to help make CF stand for "Cure Found." I mean seriously, talk about dedication! It makes me feel unbelievably loved and supported to know that even when this disease can feel so overwhelming, there are just amazing people out there standing with us in this fight. To the Beatty-Ruff family, and to anyone who has ever donated or walked or climbed or skiied for CF -- you are my personal heroes. (Even more so if you're also an organ donor!!)

Much love and goodnight, beautiful people.


  1. Hope these meds get you up and going again, everybody out of Piper's way, she's coming! I've made you a crane to hang in my room

  2. Well I think you look adorable!
    I hope you are feeling better soon!

  3. two cuteys in that photo! Hope the AB does what it's supposed to. I'm still going through your blog history, it's amazig how simular many of our stories are. Different names and places, but facing down the same demons. Be healthy!

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  5. And, if anyone wants to support Gloria's climb - please check out

    Thank you!

  6. Awwww, cute picture Piper. And the dog's nice too. :) Hope the meds are kickin' in and you're feeling better by now.

  7. Hi Piper, my name is Lisa. I live in Toronto, Canada. I have been following your blog for a while now. I started following the blog Journey of a Lifetime after I first heard of Natalia's story through the local news. After being exposed to your world of CF, I feel emotionally connected and inspired by your courage & Attitude. Just wanted to let you know that your story has touched lives beyond those with CF. Love your expressive and edgy writing style. We pray for you and for all of those living with CF.

    Hope to read a new post soon.

  8. How funny because what I noticed first in your photo is how beautiful your smile is. . .really. I hope your IV's help you to feel better.