Not sure how I got here, but I'll definitely take it.
My wonderful surgeon dr. Sonett just came in to tell me I'm aiming for home by Tuesday or Wednesday, in part determined by how long fluid takes to finish draining and, of course, in part hard work. I feel up to the challenge for the first time in a while.
Honest comments: 1) this is hard, 2) like most hard things, it seems worth it so far, and 3) the icu, while full of great people, is a hard place to be.
Goal for today is to walk and get stronger. Can't believe I have 4-5 days left!
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About Me
- Piper
- I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice!), and dog owner living in Colorado's beautiful Mile High City. I love all things colorful, funny, inspiring, or needlessly sarcastic. I share my city with about 2,500,000 other remarkable people, share my disease with 70,000 other beautiful souls, share my life with some unbelievable family and friends, and share my apartment with one very handsome guy and one really fat mutt with a kick-butt personality. We make it work.
About This Blog:
This blog is about me, my life, my sometimes craziness, my disease, and my current journey as a double-lung transplant recipient. It's also a celebration of everyone out there with CF (and other chronic illnesses). It's for you, inspired by you, and dedicated to you -- the community that keeps me writing, living, and breathing.
Want to Contact Me?
Please email me suggestions, thoughts, comments, or criticism. Seriously, I love hearing from you guys!
Send all emails to:
matteroflifeandbreath@gmail.com
matteroflifeandbreath@gmail.com
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Absolutely amazing! And you're right on about the hard stuff being worth it. Totally in awe of your recovery. Really a testament to all the love and light coming from inside you and around the world. It's a great thing to bear witness to!
ReplyDeleteTime flies when you're having fun right??? So glad to hear you're out of ICU and on the path toward home. You can do it Piper :)
ReplyDeleteThat's phenomenal news Piper! I know you can beat Patti's record. :) LOL. Many {{{hugs}}} ~Juliet
ReplyDeleteYou are doing so beautifully!!!! Walk, walk, walk girl even if you don't feel like it. Love you and praying for you daily my new transplant Cyster. :)
ReplyDeleteAwesome! Less than a week to go in there! I bet you can't wait for your own bed and your puppy. There is nothing like being locked up to make you appreciate home, which I'm sure is EXTRA true right now.
ReplyDeleteI just want to say how proud I am to be your friend. You've held it together through things that I can't even contemplait. And yet you never failed to let it show when things got hard and let us all be there to support you however we could. You're awesome, cyster!
You're finally here. The home stretch, and with so much calm in your voice coming through. You can do it Piper. All that Gyro training made you ready for this moment. Now get out there and show 'em how it's done. Much love!
ReplyDeleteAwe, I am just in awe!
ReplyDeleteWe always, always appreciate your honest comments. We are all here cheering you on!
ReplyDeleteJulie
This comment has been removed by the author.
ReplyDeleteThanks Piper for your honesty--I'm sure "hard" doesn't do it justice. I'm cheering you on from Colorado every day in my heart. Drain cyster drain!
ReplyDeleteGreat to hear your doing so great!
ReplyDeleteI've always wanted to ask you this .. how do you type so much and so well on your Iphone! Wow ... I can barely type one blog paragraph on my Iphone. It frustrates me! Lol!
AMAZING!! :)
ReplyDeleteWOW, home in less than 2 weeks??? Pretty amazing! You can do it!
ReplyDeleteSo awesome Piper! Keep it up!!!!
ReplyDeleteWalking is so good for you! Try to get out of your room as much as possible, great for your spirit and lungs! <3
ReplyDeletei got discharged ten days post. (i think they pushed it a bit so i could be out by Christmas)
ReplyDeleteit is still hard when you get out for a little while... don't get discouraged. i still had hot flashes (not really flashes.... they were kinda permanent all night)
also i had trouble not sleeping for a few months
occasionally i still get chest pain.... not bad though
the chest tube removal hurts a bunch too... but it is over pretty quickly
it is most definitely ALL worth it. the hardest is behind you now! you did it!! praise God! yay!