Wednesday, June 16, 2010


One more quickie! Thanks to Joan, Pip's most amazing God mother, and world famous Jane Austenologist, t-shirts will in fact go out this week! We've been wearing them all over the hospital, seriously. Just in case they didn't know from our incessant badgering what we were there for...

- Posted using BlogPress from my iPhone


  1. that shows good team spirit! Go Team Piper!!!!

  2. What an amazing family - I don't know Piper personally, but I was bragging to office co-workers about her on Monday. Now I'll wear the shirt with pride - you'll be gaining ground every day, Piper! There might be a few road blocks, but if I learned anything through my transplant, it was the power of patience (which I'm sure you've already mastered). Have a fabulous day!

  3. Thank you, Joan! We'll be wearing our shirts with pride! Love to all of you.

  4. Oh yippee!! I was just hoping we could have them by August ;) Taking the boys to Disneyworld can't wait to show them off!!!
    So happy for you!! Keep up the great progress. Lots of LOVE!

  5. God bless you Piper, keep up the good work!!! I am late the the party, but is there any chance I could get a shirt? I wear an XL and would love to show my support. Feel free to email me at

  6. YAY for shirts! I can't wait to get mine!!

    So glad Piper is continuing to do well!!! Can't wait till she gets back here!

  7. Hey Piper, You dont know me but I joined CF2Chat back in 2004. These days I mostly just read the posts etc. I had my dbl lung TX back in Nov. 24, 2007(due to CF as well) at the University of Washington in Seattle. I am doing well. I wanted to share a few things that I was never told during the first two weeks or so after transplant. The first thing was that i felt some anxiety leading up to leaving the hosp. i felt that i was leaving a safe place and if something goes wrong, Oh no!!! But thats why they have you close to the clinic for taht reason. So dont worry you wont brake and your new lungs wont fall off :-)( can you tell what i was thingking :-)). I even went home where i lived which was in Oregon and was about 4 hours away from the hosp. on my 13th day after transplant. I did well so my wife and i convinced the docs to let me go home just for a few days till my next appointment. assuring him we would return if anything small happens. They did and said not to tell any other patience. I ended up going back home for good at three weeks. We did a lot of driving during those first six months but there is no place like home. I even returned back to work on Jan 1st which ws about 5 weeks after tx. I missed my daughter which at that time she was only 5. And that was my big motivation why i wanted to be home . I never ate before the tx but when they took out my tube atfter six hours of the tx and at 12 hours i wanted food. they said no at first just liquids, but i insisted and finally got jello, pudding, mashed potatoes and pop after 12 hours of the tx. and i havnt stopped yet :-). I also was up walking at 24 hours. The more you eat and walking you do, the more strength you will have. Dont wait for them to come for your walk, ring the bell and say i want to walk again and again. Trust me i know they dont like it because it does take them about 30 min to get all the tubes etc. ready for walking :-) I guess i am trying to say having cf you become a fighter and i know you know this and strength is what we both live for and the more you can do the more strength you will have. One more thing that i was not told was the first few nights away from the hosp. i woke myself up because i felt i had stopped breathing. I asked the doc at my next visit and he said that is normal, but it did freak me out because i thought something was wrong. Well i better stop or i can go on and on :-). Be strong and still praying for you! Take care

    CF2chat name was Corvetteman

  8. Yay to Piper's Godmother! Thank you. I can't wait (and my daughter too!) to wear our shirts. :D

    Piper, I hope you're continuing to heal with record speed and are up and about! Yowza. You Rock Cyster!

    Hey Corvetteman - what a great post. Thanks for sharing. You should post more over on CF2Chat! ~Juliet (with a '65, '70 and '07 corvettes)

  9. I want a shirt! I missed out on the shirt stuff when it first came up. GOTTA have a shirt! :) Love you, dearie! You are a rock and an inspiration, I hope you know that...especially when you're feeling oh so shitty. Much love! :)

  10. Coming in at the last minute to ask if it is possible to get a t-shirt still?

    Go Piper Go!

    Laura Mentch

  11. "When you get in a tight place and everything goes against you, till it seems as though you could not hold on a minute longer, never give up then, for that is just the place and time that the tide will turn." Harriet Beecher Stowe
    Let's hear it for the turning tide!!
    Love you!
    Louise & Dave

  12. JOAN,The GODMOTHER at T-SHIRT CENTRAL: Leave your e-mail if you want a T-shirt, and I will reply with details. We have T-shirts left: cost $10, which will be donated via "Piper's Team" (from the CF Great Strides Walk in May)to the Cystic Fibrosis Foundation; additional donations welcome.

  13. God bless you piper....

    go for more t-shirts on the following